hello,i was wondering has anyone on here been checked for a parathyroid tumour??? I recently went to the docs about a lump in my groin,just a hernia hopefully,anyway they took some bloods and my calcium came back high,i was doing a bit reading on high calcium and one of the things it can be is a parathyroid tumour,a rare hormone condition that can make you feel tired and sluggish all the time plus low sex drive etc,just curious…
Please check your vitamin D and PTH and post your reults in
viewtopic.php?f=4&t=3420&start=140
use the graph to see if your results are normal. There might be other reasons for high blood calcium.
It probably developed secondarily.
Enden had a parathyroid tumour and removed it with 0 results
but did his blood calcium return to normal after operation? if not then the reason is something else other than parathyroid.
yes.
changes in blood calcium doesnt cause androgenic hormones to not to anything, or even worsen sexual function
“Yes” means what?
you mean he had Pthyroid tumor and after his operation his blood calcium is normal? If this is true then it means all of us (with high blood calcium) have pthyroid tumor due to fin/sp use?
Yes, I got checked a few years ago when running a bunch of blood tests for PFS. I was low in vit D and testosterone, which was expected, but I also was high in calcium. We then did some follow up tests more specific for the parathyroid, but they were negative, and the high calcium resolved over time. I suspect there is something going on there with the parathryroid, fin, calcium, and vitamin d for sure though, especially as so many here have reported low vitamin d.
I have high venous calcium, low vitamin D, and Sodium
That is not true. I experienced drastic improvement after the surgery. I had a setback about a week later, but the mental improvement has lasted. You should know that I’ve been dealing with other issues as well. Secondary hypogonadism, severe growth hormone deficiency, and an issue with cortisol that’s currently being investigated.
Wrong! Primary hyperparathyroidism IS associated with sexual dysfunction. I believe that it’s related to reduced GH secretion, and that it’s what caused my severe GH deficiency. Anyone who’s diagnosed with it, should remove it as soon as possible. Don’t fuck around. My case was advanced, and they were afraid that it had spread down my chest. Luckily, it hadn’t. However, I’ll be monitored for MEN1 for years to come, as I’m relatively young to be diagnosed with primary hyperparathyroidism. This disease is more common in women than men, and I believe that it’s related to estrogens, and thus that it may be caused by Propecia.
ncbi.nlm.nih.gov/pubmed/15887855
ncbi.nlm.nih.gov/pubmed/11936476
niddk.nih.gov/health-informa … sheet.aspx
PS: Hypothyroidism may mask primary hyperparathyroidism
Enden
1-is there any Total and free testosterone increase after the operation?
2- why do you think you have got setback now?
1-No, as you may see in the thread on SolvePFS.com, I suspect that treatment with letrozole is what made the condition possible to detect. Letrozole took care of secondary hypogonadism, and increased the testosterone level (both total and free) drastically, and it was stable for several months afterwards. I decided to go back on TRT earlier this year, as my new endocrinologist stated that I had relatively low testosterone still (TT - 17 nmol/L, down from 19 nmol/L, several months after treatment with letrozole), but that it was fine if I didn’t have any symptoms of low testosterone…
2-Beside severe GHD that has been treated since December 2015, there’s an issue with adrenal hormones, and I do believe that’s what caused the setback, and still keeps me from totally recovering. It’ll cause an issue with thyroid hormones, and so on. It’s well-known that treatment with hGH may aggravate any issues with adrenal- or thyroid hormones.
Enden
did your VitD increase after the operation.
are you still taking VitaminD?
I haven’t checked the vitamin D level, but I assume that it’s fine, along with calcium and PTH. I’m still using Citracal (vitamin D and calcium) daily, and I’ll be doing so for years to come.
I was thinking after the operation you would not need to take Vit D.
Enden
If your high calcium was due to parathyroid then after the operation you should not be taking Vitamin D, calcium level should be fine. IF you are still taking vitamin D then your issue was something else.
Primary hyperparathyroidsm was confirmed, and a large tumor was removed. I’m using Citracal as recommended by the clinic. It’ll help strengthen my bones, after years with this disease. Vitamin D increases the absorption of calcium - that’s why it’s added to the calcium tablets.
Enden
What I have read is that when there is parathyroid adenoma, PTH increases which knocks out calcium from the bones. When body sees this high calcium level in the blood,it decreases vitamin D in order to decrease calcium absorption. Now after the operation of PT your level of PTH should be normal (decreased to normal level), this normal level will not knock out calcium from the bones, and since now blood calcium is low(normal), vitamin D should come back to normal (higher or normal level) to in order to increase calcium absorption. All websitet tell that after PT operation blood calcium becomes normal. I am confused why you are taking vitamin D now.There should be no need now.
That is correct.
However, like said, I’m using calcium tablets to help strengthen my bones, after years with this disease. Just imagine how much calcium has been released from my bones, compared to what’s normal - when I’ve had this disease for years, and the PTH level was almost twice as high as normal. Each tablet contains 630 mg calcium, which is 63% of the RDA. I’m using two of these every day. Now, I don’t know if that much exogenous calcium will trigger a reduction in vitamin D, and that’s why 500 IU (125% RDA) is added to each tablet, but I do know that vitamin D increases the absorption of calcium, and I believe that’s why it’s added.
Enden
Please be careful about kidneys stones with that much calcium in your body. Also I am of the view everything should be natural. I mean let the body absorb calcium naturally.
When are you going to have blood tests? please don’t forget to post them.