T-michael, FJ929 and Tim1911. when I read posts from you guys, have been suffering for over ten years, I loose all hopes.Especially when I ready about peyronie’s disease.
SP… I know you are realy down…If you need someone to talk… send me a PM and we can speak on skype. Ok? Dont lose hope mate!
down? I don’t think, I mean I am trying to get realistic, trying to accept it and trying to shape my life. I am trying to take it as an accident where you get serious injuries. We are lucky that we did not loose any arm or leg but time to time I just get depressed especially when feel very weak and nauseous.
And I’m almost willing to bet your depression cycles…feel better than waves of depression with worsening sexual function? As far as peyronies, I don’t believe it’s due to calcifications, my bend came overnight. I believe it’s all hormonally related and down regulated. Hang in there SP
I mostly write these so that people can read and understand how devastating the sides of using 5AR inhibitors are and how much lies these pharmaceutical companies tell us.These companies propagate criminal lies.
These days I am under immense pressure.On one side is my family,my kids and no job and on the other side weak body, painful hands and feet.Hands, feet and whole body is cold like ice. Don’t know what future has for me. Even if I get a job how will I do any work? My feet start swelling within 30 minutes and I need to sit. The more I think the more I get depressed.
thanks every one who sent me PM.
I will not lie some days I have been very negative. This challenge has challenged my faith in my God. Only my belief in my God is keeping me alive. I will not commit what Satan is forcing me to commit with the help of God. My religious faith is that if you killed yourself, you would go straight to Hell fire and Hell is the worst place. So despite these all I keep telling my self what if I am given a choice between Hell fire and this so called PFS. what would be choice? Besides this for every suffering in this world we are rewarded and will be paid in full in life hereafter. This is my medicine and this is how I am struggling.
There is a new drug coming onto the market in December for Peyronies. IT’s a breakthrough drug. I wouldn’t worry about that I think there is hope.
The loose term peyronies is used to describe out penIs bending. Mine occurred overnight, I don’t believe at all that its bc of calcification build up etc. I believe it’s neural/hormonal. User Propeciashiz has already had success in doing so
peyroines is plaque buildup… plaque happens when you mix free radicals and cholesterol together.
what are you saying happened exactly when you say neural/hormonal this is pretty broad?
Not for me. This a really complex problem obviously, we’re an ‘unsympathetic’ and unfashionable interest group, and there’s no financial profit incentive for investment in possible treatments. I guess I haven’t lost 100% of hope otherwise I would log in here, but I’m most focused on accepting my previous life is over.
Bryce54- mine and others developed the bend overnight during the crash. There was no time for an accumulation of plaque etc. in fact many PfS patients have been checked for calcifications and either have minor noncontributory or not at all. First thing a urologist will do if you claim you have a change or bend will order hormonal tests. Propeciashiz had success reversing the bend/veins by using triptorelin. IMO, Everything we are all experiences (certain people to certain degrees) is stemming from a single neurological/neurosteroid affect. In Awor’s update a few weeks back he said significant findings involving Nuerosteroids were made.
I’m going to go even further and predict that our entire problem begins with improper progesterone to estrogen ratios in our brain. That has a hormonal cascading effect including testosterone, lowered thyroid functioning etc
thanks for the info.
but if no calcification, then what is there making the bend happen? as in, what is there making the bend happen? some weird muscle changing directions or something?
(calcification is same thing as plaque or no?)