Hi Zodiac,
Do you have a cure to restore your body ? Have you seen a good scientist ?
Jay
Hi Jay,
I can tell you that i am doing better then 2 month ago. I realy think that i am on a good way out of this mess, but still have a long way too go.
I have seen a lot doctors, but they all tell me everything looks fine… Only an Urulogist told me that this might come form propecia stop and i have to wait 6 month to let my body regulate hormones bach to normal.
I took 25mg of zink every night before going to bed 2 month ago and i think it helped me to get better sleep, better dreams and morning eractions back. But i can not say for sure if it was the zink or only time that made me feel better. I am also doing better since i take care of what i am eating, very low suger, no fruit suger, nearly no milk and no alcohol. I think for me the key is time and a healthy lifestile.
Unfortunately the last 2 weeks i am dealing with headaches very often and have again more days where i am feeling very tired. I still have a very low stress resistance, anxiety problems and the thing that scarys me most are my heart arithmies that are very frequent last days. I want do do sports, but every little effort gives me more heart arithmies and makes me feel horrible the next 3 hours.
So overal i think i am improuving but far from being cured.
hormonal blood test from 22/12/2017:
Prolactine : 20.1 ng/mL (range 3.5-19.4)
Total Testosterone : 4.78 ng/mL (range 1.68-9.54)
SHBG : 28.2 nmol/L (range 13.5-71.0)
Free Testo calculated : 0.11 ng/mL (range 0.03-0.20)
Bio Testo calculated : 2.55 ng/mL (range 0.76-4.69)
DHEA-S : 407 ug/dL (range 140-484)
So i had another blood test yesterday from my house doctor to check my cholesterol values, i asked her if we could retest hormones i got tested in december because the urologist told me to retest in 6 months. Unfortunately my house doctor doesn’t recognise pfs and told me my problems do not come from propecia and that nothing is proven on this…(she is the one who has prescribed me propecia over ±20years…)
I could convince her at least to test prolactine again, because of the higher value of december test. Here is the result :
Prolactine : 5.6 ng/mL (range 3.5-19.4)
So ±10 months after stopping propecia my prolactine level seems to be restored again. So because i got better over the last months i think my body is on the right track. Unfortunately the stress level and head pressure are still a problem for me, often have problems concentraiting at work, have the impression my thoughts got slower over the last weeks… At least the last 3 weeks my heart arithmies/palpitations got a lot better, i rarely now feel them and even often forget i have them.
So after 10 months i can say that se sexual problems are all ok now to live with, only the mental ones are still hitting me sometimes more sometimes less. Hope time will help me also with this.
Wish you all a good day.
Zodiac’s you don’t have brain damage from the actual drug, you have issues in your body now that this drug caused. The issues in the body are now allowing toxicities, pathogens, and whatever environmental factors which could cause issue to do indeed that- cause issue.
So in essense, your whole system including brain is being damaged no doubt about that with these environmental factors harming you. But its due to something internally that finasteride changed in your system most relevantly your overall detoxification system is injured.
So you think i have to help my body with detoxification to improve my symptoms?
Time for an update.
I am now good 11 months of the drug and about 10 months after my crash.
I can say that sexual sides are not a problem for me anymore. Libido is back to 80-90%, morning erections are there nearly every morning. I have to say that my sexual symptoms where never very dramatic, only the first 2-3 months my libido was near 0%. Frequent urination is completely gone, sperm volume is increased. So no problems in this area anymore for me.
Physical symtoms are also good. My hair is still there and seems to not fell out more than the 20 years on the drug. I went form 88kg down to 76kg in 5-6 months. Now i am stabelized at around 80kg since 3 months, this is perfect for me, no problems in loosing wheight anymore.
What still remains are the mental problems. While everything seems better than the first 2-3 months, i still have days where i think that my brain is degenerating. I have days of very good mood and where i am very clear in the head, but often also bad days with no energy, extreme fatigue back and problems in concentraiting and pression in my head and neck pain/stifness. Also very low stress resistance and anxiety is still present very often. My heart arithmies improved and are only noticable on very bad days. Sleep is ok and i have very intense dreams back since a few months now. Digestion is some days good and some days bad, but overal much better then in the beginning of this mess.
I had an appointment with a doctor who is spezialized in nutrition, because i had the feeling that my mental problems where more present when i also had gut problems. He took me a lot of blood and wanted to check some extra things, unfortunately i only got the next appointment in august, so i have to wait for the results. The good thing is that this is the first doctor who believed me that my problems started after stopping propecia. He told ma that the stopping of the drug stressed my body by making an imbalence in hormones which then had an impact on my gut. Because my sexual problems returned to nearly normal he told me that now we need to fix the gut. He prescribed me some probiotics to restore the gut bacterias and told me for the rest we will see in august when wee see us next and he has the blood results.
So overal i improved but my mental problems are worring me a lot. I have some days where i think that they even got worse, but on good days i think i am on e very good track to heal. I think you all know this sort of thinking…
So if anyone has a good advice for the mental problems, i would apreciate to read about it. I often read in other threads that the mental problems will go away with time, but also read storys where they got worse. What is your experience?
Thx a good day to all of you z.
P.s. : On another thread i mentioned that my urulogist told me that with my 40y i had a prostate volume of a boy around 18y. I found the data in his report, the volume is 23gr for those who have asked me.
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I also think the severity of my mental problems is related to my gut, specifically digestion. But overall my symptoms have drastically gotten better in the past 9 months. One thing that suprisingly alleviates my mental problems is olive oil. And like many others I also feel better when I water fast.
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Hi mattias,
Thx for your comment. Will give olive oil a try, and fasting is something i had in my mind to.
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It would be very helpful to post your bloodwork here. Or at least to list the blood elements. Very interesting! THX!
I got the results today, 17 pages of results and diagrams…
I will post fotos in here later, it s in French but i think most terms are the same or nearly the same in english. My gut seems to have some problems with some food now, never had problems 11 months ago before my crash. But also ohter results seem not good…
I will post the results but can give no explanations until i saw the doctor again in august.
I tried to upload the pictures,but they are putted in the topic in a very strange order. Perhaps it’s because i am trying it from my phone. Will give it another try tomorrow from the pc.
When i see my adrenaline values, i think it’s normal that i feel stressed very often and the low stress resistance… It can also explain my head pressure and even the digestive issues can be the cause of high adrenaline.
I hope that the doctor can give me more explanations of my situation in august and that we can find the cause of the high adrenaline value.
I also have low copper in blood. This and the adrenaline could explain a lot of my symtoms. Did someone else had low copper?
Anyone been tested or looked into morbus wilson?
its weird after getting pfs i went from anxious 24/7 to the most non caring person in the world, my adrenaline came back very low
Hi guys, time for an update.
As mentioned in my posts before, i was doing good except for the stress/anxiety problems.
A week ago i had more had pressure again, for 2-3 days. Then on tuesday morning i suddenly felt extrem nausea coming from out of nowhere, i had to vomit and the rest of the day i had very fluid watery like diarrhea.
I felt realy very very bad, the stress/anxiety was over the roof. Had no control over my head…my body and mental situation was very bad again. Two days i tryied to relax and calm my gut, by eating very carfuly. Thankfully on friday things went slowly better, still feel some nausea in the mornings but ovrall it’s a lot better. Stress/anxiety is better but still very high, over the weekend i could calm my body even more down and can eat nearly normal again.
So a very hard and heavy step back but could recover from this in a few days which i find is a good sign.
I saw my nutrician doctor today and told him everything. He told me this is because i dont stop to eat things my gut can’t handle at the moment. He put me now on a very strict diet and gave me a bunch of supplements to fix the things my blood test showed up. This will take a good month before i will see improvments he told me and i have to follow this for 4 months. So now i am on a protocol from a doctor for the next 4 months, then he will make a blood test again to check the diffrences.
I will put regular updates in here for you to follow this. If it helps me i will give more details over the different supplements he prescribed me for the different problems. For me it dosen’t make sense to tell you things now that could perhaps have no effect, i want to be sure that something changed for me.
Wish you all a good week.
What i want do add to my post is that the main things that i have to avoid due to my above blood results are gluten, dairy products and egg. The doc put me on a strict diet.
I find it very strange that i read a lot of posts from people telling they felt better after avoiding gluten an dairy and now i have the same diagnose from a blood test and i often mentioned the relation between my mental problems and my gut problems. I just can’t understand why we are not finding the common main issue from this mess while a lot of people seem to feel the same. There must be one doc who has the right understanding of this.
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Time for an update.
The stress/anxiety is still a big problem for me. I often think that it’s even getting worse. Lasea helps me in some way, but unfortunaltely i think that the stess/anxiety is worse when i stop taking it for 1-2 days.
The last days vertigo is more present and heart arrhyitmies also. I am still on the diet but have to avoid that i am not so consequent then the first 3 months. I think that if it’s not helping enough, then i could at least eat a little bit more waht i want…
Don’t know what to do next, think i simply have to live with this. I am tired in repeating my story to new doctors and feel more and more bad when seeing them. Next week i have an apointment with an psychiatrist. One doc told me that he thinks that i am in a burnout… I’ll give it a try, nothing to lose anyway.
A good day to all of you.
Z.
Please, don’t give Up! Good luck!
Maybe you should take some time off the diet and just do whatever feels good.