My miserable experience with propecia - numb to life

aeroengineer articulated some of my experience very well. I’ve copied and pasted from his thread with a few modifications:

I’ve been spending some time drawing up my story into a more coherent timeline. I just realized how bad my urination problems have been.

When I started taking propecia I started to piss more. I didn’t really notice it, it progressed slowly. I had a couple instances where I pissed in the bed (I reported it in a different thread), the most recent being a few months ago.

By the time I stopped propecia I was spending all my time near a bathroom pissing as often as 15 minutes (sometimes less). At least 20 times a day. Often I would have uncontrollable urges or not have the strength to hold it. If I was going anywhere I would have to stop drinking water a while before so all the water emptied from my system.

The general condition has slowly improved some since I stopped. The feeling of numbness in the prostate has reduced some. However this has definitely not resolved.

Last week I went for a 30 min walk. It was 20 degrees outside, so a bit colder. I had not been drinking excessively. I urinated right before I went outside. In about 10 minutes I had the urge to pee. By 20 it was an emergency. By 25 I had to stop on the street and urinate. So big relief. I had a short meeting, drank 6 oz or so of mint tea and started walking back. Same problem but I didn’t have a place to pee and literally pissed down my leg.

I don’t think I’ve posted about it but my activities have been greatly curtailed by location near bathrooms. I’ve been either at home or work for the past year next to the bathroom. Whenever I fly I book an isle seat right next to the bathroom. When I travel I don’t drink many liquids, often getting dehydrated, because I can’t hold it.

My decisions are based on if there is going to be a toilet nearby. It’s not a question of drinking too much and having a full bladder. It’s a question of having a half or 3/4 empty bladder and not being able to hold it with static muscle control.

F.U.C.K.

I saw an endo here in Russia today finally. I told her that I took finasteride. Her jaw dropped. She said it was banned here four years ago but some special clinics for hair loss still sell it illegally. She asked how long, I told her approx 3 years and her jaw dropped again. She said no endo would prescribe it because they know it causes sexual problems.

Good news is I didn’t have to convince her that it has severely effected me. She gave me some tests and added on a bunch more that I requested and will be getting done hopefully this week. She also recommended me to an andrologist. I guess it’s a Russian distinction for someone who deals only with male hormones. As always I will post with updates.

Denmark knows, Europe knows , I wonder wherea Canada and US are standing? they don’t know these 5AR are evils?

In the US money runs the government. Merck is headquartered in the US. You do the math.

If it’s banned in Russia because of sexual sides that’s fairly major news. Try and see if there’s anything official about this in Russian on the web, or get your girlfriend to look, if you find something it would probably help the lawsuits in illustrating the drug’s dangers.

An andrologist is just a urologist.

F.U.C.K

I’ll have my girlfriend look into it here.

The last couple days I start to feel a bit better sexually, more sexual thoughts, I actually had sex 3 days in a row without major shrinkage. I was numb during the action and had no feeling at orgasm but there was some desire.

Accompanying this has been greater than normal anxiety, puffier face, and underarm bad smell. I usually don’t smell at all. In fact I don’t shower more than once every three days because my dry skin just gets drier. I don’t use deodorant. No need.

The underarm smell has just gotten nasty and it gets worse with every burst of anxiety. I haven’t altered soaps or other things though I did try washing with antibacterial soap. It’s just nasty and I have to wash the armpits multiple times a day.

The sex ability is great but the other accompanying factors are not. We’ll see how long this lasts. I hope not long because the anxiety and smell really suck. Obviously there are hormonal factors at work I just don’t know which.

I would avoid antibacterial soap. It’s been linked to thyroid problems.
en.wikipedia.org/wiki/Triclosan

can you get us a link on the russian banning of propecia? i cant find anything… maybe its only in russian?

I have this horrid underarm smell thing sometimes, never used to smell bad pre or on fin. On fin looking back I think I used to sweat less but iwas in the normal way and smelt fine. It doesn’t really accompany anxiety for me. What is your anxiety like? I don’t really get it anymore although I don’t put myself in anxious positions.

Find out about that Russian ban man!

Well the little sex drive and ability I had disappeared as did the smell. My face lost some puffiness and I have gotten less anxious. All at once.

I agree Luckfax, I never used to smell bad. The whole concept of BO was foreign to me. I’ve only had eposides of this horrid underarm smell since I quit fin and it’s been accompanied by major anxiety. My anxiety is bad, I can’t remember anything short term, I get up and forget why. I really just want to stay home and not talk to anyone.

I’m working on finding out about the Russian ban. My gf is working a lot lately and traveling right now so I can’t find out until she’s back…

The underarm smell only seem to come out whenever im making big progress. I always took it as a good sign, it reminds me of the time I used to smell like a man

hi Martin,
did you also develop a higher blood pressure and a higher cholesterol during and after quitting Finasteride?
Unfortunately I suffer from this 2 months after stop using Finasteride(cold turkey!). Popping of joints started also after this. Luckily no sexual problems, although I now notice it improved after quitting.
What do you think I should do to resolve the popping problem. I suspect it has to do with my thyroid, hormones messed up :frowning:

[[i]quote=“martinM”]Well the little sex drive and ability I had disappeared as did the smell. My face lost some puffiness and I have gotten less anxious. All at once.

I agree Luckfax, I never used to smell bad. The whole concept of BO was foreign to me. I’ve only had eposides of this horrid underarm smell since I quit fin and it’s been accompanied by major anxiety. My anxiety is bad, I can’t remember anything short term, I get up and forget why. I really just want to stay home and not talk to anyone.

I’m working on finding out about the Russian ban. My gf is working a lot lately and traveling right now so I can’t find out until she’s back…

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Hi Martin,

I know this post is from some time ago, but I’m very interested by what you say re. Aldosterone. Dehydration and difficulty with temperature extremes is a big problem for me, and I have recently had a hair test done which showed that I have very high sodium and potassium (way too high). This all suggests to me that Aldosterone is a big issue for me. I wondered if you had got all the tests done that you mention (i.e. the saliva test), and what you gleaned from all of this?

Cheers

Hi martin,

do you have msn ? or anything we can share our toughts on µ?:slight_smile:

That’s what this board is for, sharing.

Is the drug really banned in Russia?

According to my research the drug is still legal however medical doctors will not prescribe it due to known sexual and other side effects. So a better interpretation is that according to this doctor I saw the reputable medical community won’t touch it. However special hair clinics will prescribe it to balding men.

I haven’t updated in a while. I’m still in a pretty bad place. Sexual function is in the gutter and I have fatigue, frequent urination, and other issues that prevent me from living normally. Looking back on my thread, I don’t post as often as I should. There’s a negative state, sort of not absolute rock bottom but pretty low where I spend most of my time and I just don’t have the energy or mental ability to share. I haven’t held a job in a year and a half. I most often post when there’s hope that my condition will improve. Unfortunately every glimmer of hope has dimmed along the way and I haven’t had any lately to discuss.

It’s sad to look back at my erection history of the past years to see every significant one celebrated like an old, old man on viagra. What’s even sadder is to think I used to care about performing. I don’t anymore, sexual activity when possible has just become so unpleasant I really wish I didn’t have a concept of it, had no idea of what I’m missing, had no idea what I was before propecia. But then again I don’t get pleasure from any activity really anymore so everything I used to enjoy should be placed in this category.

People think that Propecia just causes erectile dysfunction. It doesn’t just do this. It rips the soul out. It takes pleasure out of life. It takes core of your being, taking everything you live for and enjoy, and replaces it with an irritable, soulless, erection-less, bloated, sometimes incontinent, old void. The difficulty connecting sexually is equalled by the difficulty connecting and enjoying anything emotionally.

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I see Solonjk deleted his posts from years ago about the bodies downregulation of hormone reception.