Welcome to our community. Please fill in the following template as a way of introducing yourself, and helping others to understand your background and situation.
Where are you from (country)?
How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)
What is your current age, height, weight?
28, 5’5, 60kgs
What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)?
What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?
Foam once a day for 2 months
What condition was being treated with the drug?
For how long did you take the drug (weeks/months/years)?
How old were you, and WHEN (date) did you start the drug?
27 started in May
How old were you when you quit, and WHEN (date) did you quit?
27 quit in July (2 months)
How did you quit (cold turkey or taper off)?
How long into your usage did you notice the onset of side effects?
What side effects did you experience that have yet to resolve since discontinuation?
Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.
[X ] Loss of Libido / Sex Drive
[ X] Erectile Dysfunction
[X ] Complete Impotence
[X ] Loss of Morning Erections
[ X] Loss of Spontaneous Erections
[X ] Loss of Nocturnal Erections
[X ] Watery Ejaculate
[X ] Reduced Ejaculate
[X ] Inability or Difficulty to Ejaculate / Orgasm
Reduced Sperm Count / Motility
Emotional Blunting / Emotionally Flat
[X ] Difficulty Focusing / Concentrating
[X ] Confusion
[X ] Memory Loss / Forgetfulness
[X ] Stumbling over Words / Losing Train of Thought
Slurring of Speech
[X ] Lack of Motivation / Feeling Passive / Complacency
[X ] Extreme Anxiety / Panic Attacks
[X ] Severe Depression / Melancholy
[X ] Suicidal Thoughts
[X ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
Penis curvature / rotation on axis
Testicular Shrinkage / Loss of Fullness
Genital numbness / sensitivity decrease
Gynecomastia (male breasts)
Dry / Dark Circles under eyes
[X ] Persistent Fatigue / Exhaustion
Stomach Pains / Digestion Problems
Constipation / “Poo Pellets”
Vision - Acuity Decrease / Blurriness
Tinnitus (ringing or high pitched sound in ears)
Increased hair loss
Lowered body temperature
Other (please explain)
What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?
Fasting, vitamins, androgenic herbs, excersize, time
If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)?
Full blood tests for everything, only thing abnormal was prolactin tested at 1000 (Max 400)… tested again 2 days later and back to normal 200. Dr said it was just a mistake.
Anything not listed in the above questions you’d like to share about your experience?
Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.
In 2016 I took finsteride for 1 month, gradually tapering off after immediate side effects started, half a tablet after one week, then quarter after two, then just licking crumbs haha. Successful taper. Recovered %100 within 2 weeks.
4 years later… I thought about trying trying minoxodil. I wasn’t keen on the idea due to applying daily but I didn’t want to risk finasteride again and from all my research no side effects! Yay! (Not the case)
Essentially, I bought a 3 month supply of foam minoxidil and started applying straight away. This is mid pandemic, im now working from home, we’re under strict quarantine so cant go outside. After the initial one month, my libido SKYROCKETED! Crazy horny. At the time I thought nothing of it… until a few days later… nothing. No libido, no erections, completely dead. I thought it was maybe stress from the pandemic, or lack of vitamin D.
Another month passes by, still applying minoxidil. I did some researching but EVERYTHING was reassuring me minox was %100 safe and it can’t cause any harm. And there were ZERO warnings anywhere about sexual dysfunction.
Two months is up and I start doing some more digging and finally find the askpatients form. Hundreds of guys complaining of sexual dysfunction. This time, im so freaked out, and not thinking minox is a drug as its just a topical foam I quit cold Turkey (no tapering) which I believe saved me the first time.
Over the next 7 months my body has gone insane
Sexual dysfunction somewhat improved, i got soft erectiobs back. However over the coming months I would develop severe muscle twitches/spasms, internal vibrations, tremors, body jerks, burning skin (like constant sunburn)
Unfortunately in the last month, its now attacking my head. I woke up with my whole vision covered in floaters and visual snow, dry eye, tinnitus
I’ve written a full list of symptoms below, which I %100 did not have before and I contribute solely to minoxidil.
Zero libido / sex drive
Reduced/changed penis size
Reduced ejaculate volume
Altered sensation in left pinky toe to heat (like a hot shower)
Numbness and tingling in feet/legs that moved to hands/arms
Burning skin on upper body (like constant sunburn)
Burning bicep muscles
Stabbing in muscles
Random body “jerks” in legs/arms
Impaired night vision
Dry eye/Blepharitis - MGD
Eustachian Tube Dysfunction (in left ear popping)
Popping in joints (wrists, knees however no pain)
Stabbing pain/discomfort behind right ear (possibly occipital neuralgia) that travelled down right arm
Suicidal ideation (Due to side effects
The hardest part of all of this, is not knowing what’s coming next. It does seem like something has been triggered and is unrelentingly attacking me. I dont know how much more I can take.
I’ve had all bloods, all scans, everythings %100 normal.
The hardest part is NOT KNOWING what minoxidil actually did.
There’s so much debate around where its a 5ar reductase inhibitor (i think most likely as it seems to target sexual function first in the cases I’ve seen) or if its similar to PSSD or if its something/another mechanism entirely.
Im very close to suicide, although I dont think I can go through with it because im too fucking weak.
Again, because I dont know what its actually done I dont even know if any protocol like CDnuts would work or what PSSD protocol I would follow. Im so scared im going to continually deteriorate. The only good thing of all this is apart from some tinea versicolor, physically I havnt developed gyno or anything.
Im at a complete loss, about to lose my job and my home because I can’t keep going anymore.
Any theories about if you think this is more PFS or PSSD are welcome. I ultimately just want to know what’s happened. Im only 28, and only 7 months in. No idea what happens from here but it sounds like I’ve crashed a lot harder than some other people.