[quote=“bluecloud87”]
They are as lost as us. Often they are going in the same roundabouts that we are in regards to treatment. What would be great is a single forum that can easily be found for people dealing with severe sexual and cognitive issues after using medications such as 5 AR inhibitors, anti depressants and accutane.
groups.yahoo.com/group/SSRIsex/?v=1&t=directory&ch=web&pub=groups&sec=dir&slk=4
paxilprogress.org/forums/forumdisplay.php?f=5
recover.forumup.org/[/quote
Of course they are as lost as us. We all realize that and have empathy for them, but you’re missing the point. Just because a few of their symptoms are similar to ours does not mean the same mechanism in our bodies is causing it. If this website becomes filled with users of all different types of medicines, How can any researchers actually rely on it. Not to mention, how can any of us actually get much out of it.
For those of us that have been suffering for years you know how complicated PFS is. There are a ton facets to it and to convolute things by bringing in people suffering from other medicines and bring in woman is going to make it one big worthless mess of a website. Anyone who has even a rudimentary understanding of medical research would now that you have to research each condition separately and then collaborate. Come on, this is common sense.
Then there is even the legal aspect of it. I’m sure Merck is tickled with delight that other non PFS sufferers are allowed to join this sight. It completely skews the number of members the forum has, not to mention the information itself. In the end, the moderators will be making this decision and I doubt they are going to let this message board become a free for all.