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Hang in there my friend !
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I was tempted to reach out earlier but bit my tongue when I read this:
So I complied with the request. I was a little disappointed that others disregarded the request for whatever reason. I am sure they had good intentions though. Now that the request appears to have been waived, I am showing my support.
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It’s almost always better to let each other know that we care when the chips are down, imo.
Ryan’s an absolute legend in my opinion, there’s not a lot I can do to help right now, I know it and he does too, but I absolutely had to send a message anyway.
Would recommend everyone tries to support one another here. We all need it.
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Candida and pathogens taking hold, white thick phlem, crust on face, jello coming out when going to toilet, fungal nails infections huge haemorrhoids that came on a few months ago, looks like a baboons arse, sand coloured ribboned stools, more weight loss, jaw and limbs thinning further, allergies and food intolerances are very bad. Cracks appearing on ankles now too. Piss frequent and like tea. Was at hospital wednesday for RA check up urine showed high levels of ketones and trace protein. Nurse asked if I had diabetes. (Bloods don’t show anything diabetic related) but its very concering as is all of this. A new Dr saw me (read my notes) and said he knew about pfs and said its a real problem. He was aghast at the changes when I showed him photos from just a few years ago. CRP has recently climbed as been off rheum drugs for 13 weeks in the hope candida would recede. Inflammation/crp is colon related and not RA. They talked antibiotics and various antifungal drugs which I initially declined. They then came up with nystatin which I’ve reluctantly started. My biome is fucked no lactobacillus, biffidus and v low butyrate which leaves me at the mercy of these invaders. Tinnitus screaming from the 1st day of use, feel some increase in androgens (oily nose) but also extremely giddy, suicidal and self harming urges along with constant nightmares arythmia Iis becoming more frequent and chronic inflammation is very apparent/painful, trigger finger has returned and swollen knuckles, elbows come on as soon as i eat , guts are a complete mess., limited absorbtion/nutrition, hot gas, groaning and abdominal, back pain, red skin stains on ankles and feet "liver’ New lows just getting this recorded.
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This is what it came too in the end.
My mind was ravaged aswell i no longer recognised myself Nothing on Earth compares to the potential ruthlessness and destruction that this causes. Nothing in my life was left untouched
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Fucking brutal. My limbs are headed in that direction, I can’t even look anymore.
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This disease is just incomprehensible
Lazarus have you ever tried DHT treatment or was it ever suggested to you by your Endo?
Have you ever had your DHT levels tested?
I know you describe collagen loss on your face as invisible thumb prints and how certain foods can suddenly make a new dent appear
I experience this and wonder should some day I try DHT eventually as I know anti DHT food makes me worse
Stay strong mate
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@LazarusRy I have no words you haven’t heard before, but know I pray for you.
Also, did you have gastroparesis? This article suggests using erythromycin, in case it is new to you. Jim
Please respond whenever you can Lazarus. The brevity and incomplete nature of your post worries me.
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I’m being sent for scans to rule out cancer, last year when I’d put weight and muscle on I should have looked to heal the gut … a huge opportunity missed… now it all seems to be out of my hands.
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The dramatic worsening has stepped up a level. Had to leave my wifes again this morning very hard, suicidal, irritable, i feel she cant deal with it, well she cant as i get worse, i lay there after springing awake @ 1am this morning massive urination, extreme anxiety weight loss, everything pain, destruction of my body, guts etc etc horrific, feels like everyone is pushing the phyciatric card at me. Realised the hair is coming back in on my scalp. Ive looked into tocilizumab the drug i recently restarted for RA to help with the pfs, to find reports it possubly helps with hair loss. The explanation for why ive only got worse , feeling of doom inside me (always) its just how much horror i can take before this kills me sitting in the car staring at my childhood home knowing only a miracle will save me. 
Never feel this path awaits you the repeated years of exposure brought me to this point
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Wdym they are pushing the phyciatric card on you? You clearly had physical symptoms, what do they want to do?
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It feels like no matter what I say or provide there’s a degree of scepticism and belief most of it is in my head. Recent xrays confirmed bone loss from the last ones taken less than two years ago.
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I mean, yeah that makes sense. Tbh all mental health related issues always have a degree of scepticism cause they can’t see whats broken in our brain, while we can feel it. How are you feeling today? Better than yesterday?
It’s infinitely infuriating, I feel your pain. You even have physical manifestations so it’s not like you have the invisible illness thing going on either. I think it’s largely that with us who have multi system complex chronic illness people just don’t want to believe something like this could even happen to someone so it’s better to them to just pretend your depressed or whatever they want to label you as. It also blows my mind that people think “mental health issues” can be separated from the entire biology of the rest of the body, it’s absurd. The mind is not another planet, it’s the mirror of what is going on in the body.
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Well! Went out for restaurant food for tea, immediately started getting hot gas and grumbling, went to bed as normal woke @1am and it broke loose, acid, nausea, head aches, tinnitus through the roof, back pain and pain everywhere, like breaking a damn at the other end been at least 6 times, none stop,it’s like I’ve been poisoned… weak as piss… vison, eye pain anxiety ramped 9.5 hours later and feel terrible… yesterday I was thinking I’m sick of living like this so fuck it and I get hit by a truck as a consequence. Stupid thing to do I know…
More weight loss ensues, new holes in the face too as immune system took a bite out of 5ar tissue
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Isn’t it ironic that you try to eat more and better but you just end up losing more with this, horrible. My weight appears to be stuck, I eat more and I just bloat more no matter what it is. Can’t really seem to be absorb much nutrients from food anymore. Restaurants can be risky alright, food crashes are real. I had one before at a restaurant myself, it was from pho and I’m now terrified of ever touching it again or anything in that heavily spiced asian or indian food sphere. Otherwise a lot seems ok in general as long as I have it in moderation and for me fasting breaks are also essential or my gut just stops functioning period.
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