I would like to update my profile a year later. It has been 2.5 years since I stopped finasteride and 2 years since I got PFS. There is something I didn’t explain in my original post. I got PFS after a single dose of finasteride when I resumed taking it after being off it for 6 months after having taken it for 8 years. I resumed taking it because I was losing hair and I thought I had stopped it too abruptly so I wanted to resume and taper off more slowly.
In the past year I have deteriorated significantly on all fronts. I thought it wasn’t possible to deteriorate much but now I know that it is. My libido was at around 15-20%. Now it is barely above zero. I used to have weak morning erections, now I don’t have any. All other sexual symptoms are worse. (Except watery ejaculations - that resolved after I quit finasteride and hasn’t been an issue since).
The other serious new symptom I have is joint pain. I got that in May 2018 (2 years after stopping finasteride and 1.5 years after I got PFS). I didn’t have joint pain before then. The pain started with my left hip joint. Now my right one is also starting to hurt and so is my left knee joint. This is severe enough that it is restricting my mobility. Any exercise is out of the question. I try to minimize walking and standing so even going to the gym for exercise that doesn’t involve the legs is out of the question.
Emotional symptoms are worse than ever. A year ago I still had some hope remaining that I would improve. Hope is now almost completely gone. A new mental symptom is emotional blunting. Slurring of speech I had all along but I had not noticed it when I did the original report. On the other hand, I don’t have anxiety any more (because I don’t care about anything any more).
Testicular and perineal pain is gone (I used to have that - not any more). Penile, testicular and scrotal shrinkage appears worse or at least not improved. Hair is progressively worse. Urinary problems have not improved.
I have not undertaken any treatments nor taken much supplements. The only things I take consistently are vitamin D and selenium. I was taking zinc for a while but then stopped. My sexual symptom deterioration might have followed zinc discontinuation but I am not sure. I started zinc again recently and I will report if it has a positive effect.