Journal of a Wildman

Im not sure, but please let us know how it goes. The updates from you and other veterans is a tremendous boon to me.

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Hi Jim,

I’m sorry to hear about that.

In terms of the no sexual response, the dead meat and depression, you are describing a crash. So say, I would say it might be cause and effect. I haven’t had any experience with Nitric Oxide, but I would stay clear of it just for now.

While it did sound like it was offering you a temporary sexual recovery, it seems that once you stopped it, you had an immediate crash.

There have been other supplements on here that give great temporary recoveries, but cause crashes once stopped. The good thing is ALCAR is not one of those.

The reason I crashed from ALCAR the first time I ever took it, was because I only took it for 3-4 months. I didn’t even feel fully recovered at this point, I was only half recovered and felt a bit better than having full blown PFS. 2 months after I stopped, I slowly started crashing. I should never have stopped. It sounds different to your immediate crash, and I would say it is related to the NO.

ALCAR won’t give you a quick temporary recovery. But once it starts to work, it really works.

If I was you, I would stick to just cycling ALCAR for now. From what I have seen, no one on this forum claims to have experienced a crash from it.

If after 6 months of ALCAR, and if you really wanted to still try NO again, then you could. But both @Livid171 and I are both proof of ALCAR success stories. I’m not sure about long term recoveries from NO.

I am currently at 7 months cycling ALCAR, and I feel incredible. I haven’t felt like this since before PFS. Each day I feel more recovered. It almost feels like I am fully recovered some days.

Don’t worry about the fact that you’ve crashed, if you are starting cycling ALCAR now, that is all that matters.

This time around, I crashed about 3 months in to taking ALCAR, because I started eating too many 5-ari’s at once. While the crash sucked, it didn’t hinder my recovery, and at 7 months in I feel fantastic. I can now have more 5-ari’s without any negative effect.

In terms of the ā€œno sexual responseā€ that you describe, you might not experience positive results from ALCAR straight away. Your crash will pass, and if you stay away from 5-ari’s and keep cycling ALCAR, it will pass even quicker. However on ALCAR you might not start to notice positive sexual effects till 6 weeks to 2 months in.

If you ever do crash again, taking ALCAR seems to ā€œkickā€ the crash away quicker, which is good.

All I cycle is ALCAR, it has recovered me in so many ways, especially sexually. That part of me almost feels fully back to normal these days.

While NO might be a temporary fix, ALCAR is a long term supplement.
Even after you do start to feel recovered after 6 months on ALCAR, keep going, don’t stop.

Good luck Jim, and hope to hear good things soon.

Hang in there, it’s worth it.

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Want it on the record…

First visit with a new urologist today. I have had BPH long preceding my PFS. In relating my history to the Dr, I told him I was on Proscar for several months but quit it due to various side effects. I asked him if he had heard of ā€œFinasteride syndromeā€, his answer? Yes but he doesn’t believe in it. OK. He just dropped my confidence in him.
I asked him to change my BPH med from one that is no longer working (Doxazosin) to another that gets high marks for BPH (daily Cialis). He ignored my request until after he does some ultrasounds and other tests. He suggests we may end up doing a procedure instead, that would stop the need for meds ( TURP or Urolift.)
Also, I asked him about using Nitric Oxide (NO) supplements. Without hesitation he said no. Waste of money. There you go, @Leesy.

We had further discussions that are irrelevant to this forum. I mainly wanted to expose the anti-PFS attitude of this highly regarded Dr.
Thanks, Jim

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What’s ALCAR pls?

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ALCAR-- (Acetyl L Carnitine).
Discussed in depth by @Leesy in several previous posts above, starting at post 160. Take a look, hope it helps. Jim

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Not good for me. Bad effect

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I reacted badly to it too.

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I’m sorry to hear that @Legalmust. What were the bad effects?

That’s not good. Can I ask how you reacted to it? @LazarusRy

Accelerated metabolism weight loss and increased pains there are probably underlying pathologies but carnitine did me no good at all to build it helped me lose. I believe that the properties you attribute to it are completely non-existent if I may afford it. Alone a little energy but to the detriment of what burns you then pay the consequences

Just putting this study out there:

How the keto diet could one day treat autoimmune disorders by increasing anti-inflammatory compounds

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But butyrate has absolutely destroyed some people here, I think one of the final pushes in my recovery was reducing the lactic acid load by reducing the bacteria producing it and like tryptophan and its metabolites too. In fact I believe the brain burning thing some of us here got may actually be a lactic acid and/or tryptophan/tryptophan metabolite overload. Not saying Keto is bad though, if it works for you it works for you but just saying with this condition it’ll still help to tread carefully with it especially if you’re much earlier on in healing…

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Proscar fin victims

My travails with finasteride started with Proscar over five years ago. I’ve summarized my current situation here for those who may be in similar straits, with prostate problems instead of hair loss:

I first was diagnosed with BPH @2018, and my urologist prescribed daily Cialis for relief. It worked great, but after a year my insurance company decided not to cover it, it was a ā€œsex drug.ā€

Around then, memory fades on timing, my prostate was enlarged enough that they did a biopsy, which was negative.

After Cialis, Dr tried Flomax but it gave me headaches. Then came Proscar. In less than 90 days my sexual life dropped from 2-3 times daily (in my 60s!) to total absolute nothing. Been that way since.

I searched online and discovered PFS and the connection to Proscar. I quit Proscar cold turkey, Dr switched to Losartan which I still take, but it barely helps.

My Dr moved out of state, the pandemic hit, and I didn’t have a urologist for 4 years. Now I’m pissing 4-5 times a night and every 2 hours during days.

I finally found a new urologist in October who specializes in BPH and TRT and hypogonadism. He thinks I am a candidate for a procedure such as Urolift or TURP or similar. I am scheduled for an ultrasound of kidney, bladder and prostate in December. Also, some bladder emptying test I don’t understand yet. By Christmas I’ll know more about my prostate and the hope for relief.

I’m 69 now and have finally seen some returns of erections. I’m hoping for less pee time and much more sexual recovery! Maybe that seems shallow, but I’m weary of being a eunuch!

If you have further questions, write me. Or, if you just want to chat. I’m here, Jim

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Please kindly pay your attention to my good friend Jim for his commendable and selfless character. He is going through a rough change in addition to longstanding PfS, and he continues putting the wishes of others above his own. I cannot say too much as he has not given me liberty to do so, but I want to draw attention to his additional plight as he needs the thoughts and prayers.

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My friend @Taw has opened the door for me to relay some bad news.

As some of you might know several years ago I attempted to leave this world. My wife was there at an opportune moment and saved my life. But in the years since then there have been many times when I have thought about doing ā€œthatā€ again.

The only thing really that has stopped me has been the fact that my wife is a survivor of cancer in her lungs, but was still undergoing immunotherapy. She needed me by her side as she went through this. That was enough to keep me grounded despite my PFS miseries.

But now comes the sad part and the bad part. My dear wife passed away last week from cardiac arrest. So now I am alone, no kids and only a few friends.

This is all still so fresh that every day is miserable. I find myself so many times a day telling myself I no longer have a reason to stay. My sisters live a thousand miles away, but they text me many times a day with encouragement. But that doesn’t take the place of the warm hand I no longer have to hold.

We were together 50 years and I am hopeless and helpless on my own. I do not expect to do anything drastic very soon, but if the Heartbreak doesn’t lessen in the days and weeks ahead, I make no promises.

Good luck to you all in your search for a cure and the healthier life. I’ll be 70 later this year and there will be no cure for me. Take care of yourselves and each other and do not abandon the Forum here!

Good day to you all, Jim

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We’ve never talked to each other but I was reading your posts ever since finding this forum and had a nice time checking some of the music you shared in the music thread.
I just want to offer my condolences.

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@Soup
Thank you for your kind words. I haven’t posted much music lately, I never had much response to recent tunes. Glad you enjoy them. Jim

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My condolences Jim, I’m distraught to hear this. I pray for better days, and joy to come your way. You’re such a selfless person and you don’t deserve any of this.

Inbox me if you need anything.

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Thanks, @Hopeforbetterdays.
We were together 50 years. She helped me cope with PFS, and I was there for her as she battled cancer.
Now I can’t tell you how many times a day I wish I was dead, too. I hate being alone.
But, I’ve got a slate of legalities to deal with, and a house full of ā€œstuffā€ to go thru. I’ll be around, like it or not.
Thanks again, Jim

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Dearest Jim.

This is very sad news and the deepest of condolences in losing your love.

I believe she is around you our souls are eternal you just can’t see her in the physical realm anymore.

Your loss and pain must be great but try to continue in your fight God will choose the timing.

Rest in him Jim.

You are highly thought of on here and are a very kind man you wife will be looking down on you with pride and love. Love is eternal and has no bounds.

I’m so sorry Jim :heart:

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