Sorry to bring bad news.
I hope I would never come back on this thread to say so, but well my condition got worse those last months… For a long time I hesitated to report, hoping it was just a bad period like I always had from time to time even when I was feeling at my best, but now it’s obvious it’s worse than just a bad period…
So I give you the update, sorry, it’s a bit long but I need to relate…
NOVEMBER 2010 : THE FIRST WEIRD EXPERIENCE
I kept on going with my “98% condition” till like October 2010 but the reminiscence of my symptoms (pelvic pain, chest & nipple pain) which always tended to show up once and a while, as I said, were more frequent with time, which was odd… But I was still enjoying the fact to be that healthy after the finasteride mess… I had my girl, I could have sex properly, everyday, felt most of the time full of energy, no mental problem, etc.
In November 2010, I experienced something weird :
As I was not with my girlfriend anymore (I broke up) and was reluctant to masturbate alone, I decided to see how long I could refrain my need. After 10 days I noticed I had a lump in my right breast (I still don’t know if it was it there before or if it was developed due to this period of abstinence) and I began to have some severe chest pain, and also higher back pain.
I was very stressed, I came to the doctor and told him about that. He said me abstinence could not lead to such things. I checked the lump with echography and this was benign. I got relaxed but could not understand what happened.
I resumed every-day masturbation and I came back to normal. That was weird.
DECEMBER 2010 – FEBRUARY 2011 : STATE OF ANXIETY AND PAIN
Well, I say I came back to normal, but not so normal. Between December and February 2011 I remained very anxious. Of course ! I always thought that my condition was only improving since I quit finasteride and mostly since I took tamoxifen. Now I had proof that it was untrue and thus I could expect things to crash back.
So I was very anxious, and thus I had pain which retrospectively I attribute to anxiety and not to Post Finasteride Symptom : I mean chronic higher pain, pain in the aera of heart, awful palpitations.
Two or three times, the pain was so intense and my anxiety was so high, I thought I was about to die. I remind one night at the theatre, I was in the first row, I could not concentrate on the play because I had so strange feelings like I was losing my force, I felt so weak, I felt I was about to die. Finally I did not leave the room and waited till the end.
On that night, I came back home and tried to think rationally. I made some stretching and miracle, I felt 100% the minute after. No more higher back pain, no more anxiety, no more palpitations. This led me to think this episode was definitely due to anxiety.
MARCH APRIL 2011 : BACK TO NORMAL AND RETURN OF THE SAME WEIRD EXPERIENCE
Well after that I lived an incredible month during march 2011 ! I thought that those last weeks were just bad period and anxiety. In March I was 100% and maybe 150% ! Very, very horny, always thinking about girls and pleasant things. Much energy !
At the beginning of April 2011 I had a trip across Europe during two weeks. I was with a friend. I had no possibility to masturbate, and I asked myself if it was dangerous to make the same experience than November 2010. I decided to wait and see. Well, the same thing happened. My right lump, which had almost disappeared, came back and I experienced severe chest pain, after maybe 7 days of abstinence. That was so odd, again.
Back at home in France mid April, I masturbated everyday and I went back 100%, a lot of energy, a lot of libido. I was impressed to be that healthy. I maybe never went so horny since finasteride crash. Unfortenately, I was far from being done with problems.
MID MAY 2011 TILL NOW : CRASH
Mid May 2011, I experience the most terrible crash of my condition since my “recovery” from PFS. One day, around 15th may, as I was masturbating (you may think I spent my time on masturbating lol), my penis was a little painful, I did not pay that much attention. The day after, my was painful again and even numb, like in 2007 right after finasteride. I decided to give a look at it in the bathroom and I was horrified ! The dark veins were back ! I could saw the same dark veins I had just after my finasteride crash !! The day after, I woke up with the pelvic pain and the sensation to be blocked down there. A sensation I absolutely never had since Summer 2008 !!!
I always said I sometimes experienced pain once and a while when I say I was 98%, but it was not the same pain, it dit not interfere with my brain-penis connection.
This time was a clear return of the crash : I was in the same state as post propecia : numbness of penis, painful masturbation, no pleasure to touch, brain-penis disconnection, pelvic pain, glans pain.
I must admit I was a discouraged, I never thought that I would experience those problems again. The odd thing on that period is that I had the sensation to lose less hair than normal. Coincidence?
I thought of what could have provoked that, during the 30 days before this crash :
- my new regimen with lots tomatoes, avocado, olive oil and apple cider vinegar ? very doubtful
- the fact that I put some Nizoral on my head three times ? (Ok it was very stupid, but my head was itching and nizoral is effective on me as a relief for this). But I doubt 3x times Nizoral can break me like that
- the fact that I resumed my multivitamin pills ? (which contain zinc). Very unlikely as I took it in 2009 and 2010 almost each day with no problem, on the contrary those multivitamin pills helped me to get better at that time.
- the fact that it happened right after I took 3 pills of Dectancyl (Dexaméthasone), in order to make a cortisol braking test in order to check the adrenal gland for the hospital ? Well I don’t know…
NEW ATTEMPT ON TAMOXIFEN
So till mid June, I was desperate, I did not know what to do… I said myself, fuck ! I did not take any finasteride this time ! Why does it come back so hard !?
I saw my doctor, we talked about the fact that it was maybe due to stress, or maybe elevetad estradiol ( I had a check and my estradiol was the same level as before tamoxifen in 2007/08,… and finally we contemplate on going back on tamoxifen, since it seemed to work for me three years ago.
But I was a bit reluctant, I mean in 2008 I had everyday severe chest pain, that’s why I was sure I needed tamoxifen. This time was different, I had no chest pain or almost not, and overall I was feeling OK, except the problems down there.
So I took 10mg tamoxifen for 7 days. The first 2 days I must admit that I felt better in the area and I had solid erections when I masturbated.
Then it disappeared and on day 5 I experienced lower back pain, which came higher on day 6 and higher again on day 7.
So I quit tamoxifen because of this strange back pain. I read on the internet that back pain was a side effect of tamoxifen. But fuck, why do I get lower back pain with 7 days on 10 mg, since I took 30mg/day during almost 8 weeks during summer 2008 with absolutely no problem.
[Size=4]MY SITUATION NOW AND THE OBVIOUS PROSTATITIS[/size]
About the back pain, it is also a common symptom of prostatitis. Maybe I fucked with my prostate with tamoxifen this time, which I did not need unlike in 2008, and it makes things worse. Pure guess…
Let’s finish the story. The day I quit tamoxifen was last Sunday (26th of June 2011)
On Monday and Tuesday, I tried to stay calm and made a bilan :
- My mental condition is 100%. No brain fog, no fatigue.
- No chest pain, or almost not
- Muscle twitches have come back
- My genital system is fucked : no libido, no brain-penis connection, numb penis, very weak erection during night, prostate pain, pelvic pain, lower back pain, dark veins (I thought they would never come back). Interesting thing is my testicles don’t hurt at all.
Otherwise size of penis is normal. I can get a hard erection but is painful. Something I noticed this year is that I often go to pee.
All this came back with no intake or finasteride. And I dont think zinc during one month or 3x times Nizoral can bring you back so severly in that shit.
Of course, you consider my problems and you think of prostatitis. That’s obvious, and I must say I’ve always thought of that, even back in november 2007. But the echography showed nothing, and anyway apparently nobody was able to cure it. In 2009 and 2010, after my relief with tamoxifen I was so happy to be in good shape in all areas , I tried not to think anymore about it. But I could feel there was still a problem with it, since the pain would come back once and a while down there.
I came back to the forum and found this topic of solonjk.
I read the 41 pages and I’m now convinced I have to cure it. First I have to make trans rectal ultra sound. I don’t know wether prostatitis is the root of problem or not, but I’ll have to cure it.
Actually my uro-symptoms are more painful than it ever did, even back in 2007 and till august 2008. I never experienced this lower back pain, which frightens me a lot.
J89 was right to warn me I was not cured. But what could I do ? I had seen 20 or 30 doctors and all told me I had nothing, you know the story… Now there is something (TRUS) I never did and this is a promising track, since at last we have a doctor who seems to be a specialist in the field and can treat it.
I hope the TRUS reveal something. I hope not something that bad as prostate cancer.
I’ll keep you in touch. Good Luck to every one.
Ps : Mew, feel free to move my topic in “Member stories”… luckily one day you’ll have to move it back again, who knows…