Thanks for participating. You’re absolutely right that our community has been far too complacent and shy about speaking up about this for too long. The sad consequence of this is that people like you and me, who wouldn’t have taken this poison had we been warned, are now in this situation. But that doesn’t mean all hope is lost for us and that we need to accept the ruination of our lives. I have confidence in Mitch, Axo and the scientists they are working with. We do not know enough about this condition yet, but there are strong reasons to be optimistic about curing this. The fact that many people report profound “windows” in which everything, including physical changes, normalises is one such example.
We owe it to ourselves to do what we can to get out of this mess. We want to make sure we don’t compound the regret we already feel by being shy and complacent about this injustice.
It’s now time to act as an intelligent, proactive, brave and defiant patient community. The time for supplement bloviating, fake guru worship, self experimentation and other nonsense is over. The focus now needs to be on making this condition something mainstream, recognised, respected and worked on by the top relevant scientists. That is all that matters and we need to dedicate ourselves to this task until the problem is resolved. We cure this or we die trying.