I took propecia for 3 months almost 6 years ago. I started exercising and cleaning up my diet and I was doing better. I wasn’t cured but it was manageable. Lately, I have been so bad. I can’t focus on work. I am moody. I’m even breaking into tears. My free testosterone levels have been getting worse over the last year. Im not sure how much longer I can continue like this. I feel so isolated.
check your thyroid(t3,t4,ft3,ft4,tsh) and adrenal labs first!
Do you have a doctor that’s supportive? If so, check the T3/rT3 ratio, and ask for an insulin tolerance test. The first test reveals whether or not you have hypothyroidism, and the second test - which is a stimulation test, reveals cortisol- and growth hormone deficiency.
I hope you feel better. I have felt like that in the past. Luckily I have made a slight natural recovery. Maybe at this point for you clomid is worth a try. I know someone who was off propecia for four years and feels fully recovered while he is on clomid 50mg everday. I am considering giving it a try myself.
I just started seeing a new doctor who acknowledges PFS. My most recent testosterone level was below normal. It was 244.5, the ranges was 300 -1008. So the doctor wants to put me on clomid or HCG. I was managing well for a number of years. I don’t get this huge backslide to an all new low. The only thing I can think of is, I am a web developer and the stress and long hours have caught up to me.
I did have thyroid tests awhile back and they were normal.
Do you have the test results for T3 and rT3? Several people have reported a T3/rT3 ratio that’s too low, and I would like to know yours, if you have the results.
you and me both brother… you and me both. 7 yrs for me. 
This is my 7th year too.
Clomid is bad, its has too many estrogenic effects, specially on the brain. TRT is a better option. HCG raises estrogen too much.
My plan, is to back to a a urologist or a TRT doc, get on something to boost my T. Previously I did HCG and Armidex, it didn’t help with my dick issues, but it made ed pills work easier, and 'after a bit; help with my mood. Waking up not wanting to shoot my head was a nice feeling.
WTD, do not do anything stupid. I have been doing a lot of research and experiments and all I can say is PFS is an autoimmune disorder and any attempt to play with your hormons makes it worse.
Although autoimmube disorders are poorly understood and so far there is no cure for most of them, but controling and living with them is possible.
Stop going to doctors and do followings. You will feel much better:
1- Take care of your gut problems through diet and natural medicin. This is very important. Read posts from user Chi on this forum. He has tons of info regarding this subject. Go to a naturapathic doctor and ask his/her help to cure your gut.
2- Go to a naturopathic doctor and tell him/her that you are suffering from an auto-immune disorder and ask him/her to give you diet and natural medicin to control your autoimmune system.
3- Try to remove anything that provoks autoimmune response: any infection, any alergic foods, chemicals like colognes and body sprays, stress, …
4- Eat everything Organic and healthy.
5- Take a high quality multi-vitamin.
6- DO NOT, I repeat, DO NOT take any medicin that affects your hormons. Any attemp to increase your testo, dht, etc results in sever autoimmune reaction and ending up with worse symptoms.
I want to emphasize here that controling pfs and having a life is possible. Please do not do anything stupid and take action.
Hey buddy , i am in the same boat ,but i have had great success with the beating allot of the mental and physical side effect aka life altering effects. i have been attacking it with all natural cures - screw modern synthetic medicine that’s what screwed me in the first place. alright here goes.
1.Iodine supplement -the only one i have found that works( i have tried 4 major brands) is “plus- two iodine” it will take at least
3 months to see great results, but after six you will feel mentally better.
2.Cod liver oil -( i take sonne’s brand) it helps allot with mood and depression , that good ol Vitamin D helps with hormones too.
3.natural high quality vitamins & minerals - Propecia- leeches the bodies reserves of minerals and gives all types of problems (even in three months because that is the same amount of time i took the crap propecia)… I recommend doc wallachs powder form “Ultimate Classic” this stuff is a life saver helped allot with the depression , and many other symptoms.
-
your going to need a Full body cleanse your liver is still holding on to the toxic crap in your body - i recommend the HULDA CALRKE’s recipe for the cleanse . there are prerequisites to do before doing the LIVER CLEANSE , you first need to do a intestinal cleanse ,and a colon cleanse (you are wanting to get the toxins released from you liver out fast),then a Kidney cleanse ,and then 2 weeks before doing a liver cleanse you need to do a parasite cleanse ,and dot for a month ,minimum , ( i skipped the parasite cleanse at first but then later opened a LIVER /BILE stone after a liver cleanse and saw a little white worm in the bile stone!!! and then i opened allot of the stones each one had a little chunk of a worm like thing in it !!) so these stone form around parasites trapped in your liver , if you have a pet dog or cat , or walk out side bare foot or around a pet , or eat allot of meat , you more than likely have parasites!!
so before you start doing liver cleanses i would recommend “Activated Charcoal” this stuff gets the toxins left in the body out.
i have done around 20 liver stones cleanses and have crapped out over 2 thousand stones most small but a allot pretty darn big ,the biggest the size of a large marble. dont over do these liver cleanses 1 per week max! i was doing 3-4 per week and got a hernia , it makes you constipated sometimes and constipation can cause a hernia . i was feeling so good (except for the hernia)- my body was finally able to start clearing out those Propecia toxins that have been in my body for 6 and a half years. 3 months later i am almost fully healed , i am going to start the liver cleanses again until i dont poop out any more stones and then do 2 cleanses a year after that. but the Activated Charcoal i recommend taking the night after the cleanse for a few days that week just to soak up any toxins left in the body.
the stuff i seen come out of me has blown my mind. and the benefits were totally worth the hernia , i still struggle with insomnia really bad , which brings depression and fibromyalgia pain , but the regular depression ,and sadness is way better. -
you are going to need a pro-biotic Propecia ,kills allot of the healthy microbes in the intestine , which break down nutrients (minerals & vitamins)and helps the absorption process. i recommend EM-1 or Bokashi tea.
just hang in there for 6 more months and you will see the positive benefits of these Natural remedies that most doctors are clueless about . (because they are not taught Natural Healing anymore) , i even cured my Macular degeneration with heavy mineral supplements , doctors took my grand fathers retinas out when he got the same disease.
I am not totally cured but i am 75% better , if ow i could just figure out the insomnia / Chronic Fatigue thing out i would be great.
GOOD LUCK MAN - i really know this info will help /just wish i knew this stuff 6 years ago.
I’ve also found a good pro-biotic has helped reduce muscle spasms.
hope your alive mate. if not RIP.
Im at the end of my rope too. Holding out for a miracle.
Somebody send me to a hospital and have me injected with chemotherapy to destroy my PFS ridden immune system then keep me in a sterile room administering stem cells to build a PFS FREE immune system.
I wiill do it because i know its the cure