I feel the frustration of the OP and others, there does seem to be a culture of “all PFS sufferers are equal but some PFS sufferers are more equal than others”.
It feels like a small elite are privy to information that the rest of us are not, and the moment we question these things threads are locked instead of anything approaching answers being offered. This should be a forum of free expression, but we are kept in our box, or thrown out if we get too difficult. Despite the fact we are suffering an illness that causes major mood issues, despite the fact this illness has driven some people to suicide, and despite this forum being the only place for us to really turn to, especially given the aggressive campaign that was waged against the other PFS forum prior to it closing down. I personally don’t think anyone should ever be excluded if they are demonstrably suffering this illness, or that any threads should be locked.
The end result of this is often that we end up fighting among ourselves, and it sickens me to think that there are people who know some of the answers or information relevant to questions we are asking and arguing over, watching us fight among ourselves and shutting us down or simply not engaging.
It is staggering to think the PFS Foundation has a PR or Comms person who is not an active presence on this forum, but I think that is the ultimate demonstration of this disconnect between them and the people on this forum who are funding them.
The last thing I will say is, please, all of you who are stuck in the farmyard, let’s stop fighting among ourselves and getting on each other’s backs. We are all suffering, we are all frustrated and many of us are desperate. I see too much aggression between folks, too much judgement. We must stick together and if we disagree, express those disagreements in a cordial way. Because you never know how a shitty message aimed at another user might affect them, no matter how confident or arrogant they may seem on the forum, they could be really struggling.