How optimistic are you for a solution to PFS?

General Discussion
#21

It seems like we are saying the same thing here, in so many words. And I hope no one thinks I am arguing or anything, because I am not. I also encourage anyone to explore any avenue they feel is best for them. There was a time when I was a lot more into experimenting with different things. It was at a point in time when I felt like “nothing could get worse.” And personally, for me, nothing budged. No amount of spinach eating, paleo-dieting, alcohol consumption or lack thereof, supplements, drugs, etc made any amount of difference. As I approached two years, things seemed to naturally get more manageable. At this point, I am so afraid of regressing or crashing again (which some people do after methods they SWEAR by) that I feel strong enough to just say… I’ll wait. I spoke to people affiliated with the studies, and they told me they hope to publish the results and have them peer reviewed within one year. That was several months ago. So - I look forward to this year. Even if its three years, I can handle it. I recently got a very high-stress job bartending in a busy pub, and I seem to be able to do just fine (which I couldn’t before). So, my life is definitely on the up.

But again, feel free to try whatever works best for you. No one should tell anyone else how to handle this, because none of us have any clue. Best of luck to you all.

P.S. I DO like hearing about what has worked for others. I am just skeptical to try out too many things at this point in time. That may change down the line if something really promising surfaces.

#22

I’m only 8 months into this hell (nothing compared to most of you), but it’s been devastating just the same. For what it’s worth, I am optimistic about the current research—at least for its ability to serve as a springboard for an eventual treatment. Concerning the time frame some of you have mentioned, any action (the launch of further studies or potential remedies) doesn’t have to wait for publication in a peer-reviewed journal. I would imagine the Foundation would be informed of the findings via some form of a write-up (perhaps as a stipulation of the grant) prior to the entire peer-review process completely unfolding. Even after an “acceptance” from a journal (not including the several months of review), it could be well over a year before the article is published. And that is assuming that it IS “accepted.” I’m in the social sciences, not the medical field, but I couldn’t imagine a situation where someone would inquire as to my results and I would refuse. Publicly communicating results about research prior to publication is what you do at professional conferences all the time.

#23

Let us not forget that modern medicine or rather “Allopathic Doctors” have never cured anything EVER they’ve merely masked/treated symptoms.

The true healing will hopefully come one day by which whatever mechanism is broken and as the cause recognised by science, be treated in the most organic way.