Who knows how much the PFSF has actually received? They’re not particularly transparent about this information.
Also, I think we often underestimate just how small of a community we are. Maybe the admins of the forum can chime in and give some accurate numbers on active users but in any case it’s very small. Most members are either lurkers or have left the forum after past activity for whatever reasons. Maybe they’ve given up hope and accepted their fate.
I keep hearing people speculate that 1 or 2 percent of Finasteride users develop PFS.
To be honest, I think the reality is that this percentage might be much smaller.
If the percentage really is around 1 or 2 percent, then I truly resent all the thousands and thousands of men who are not present here, for whatever reason.
I honestly find it hard to believe so many of these people really exist and I don’t believe we are as big a community of patients as we like to tell each other we are.
I think having an accurate picture of how small our community really is would shock us all and stop this ongoing thing where we proclaim our disappointment in community effort results because we would realise how severely this depends on each and every one of ours individual contribution.
@Greek posted a thread a while back where he lamented people who keep posting on this forum with suggestions for what ‘we’ or ‘other people’ should be doing. Both OP and this reaction of mine are also such posts calling on the action of others and not contributing ourselves.