How much have you donated to the PFS foundation?

General Discussion
#1

With all the negativity on this forum I want to do something positive to try to boost morale. The foundation is our best bet for getting out of this mess. The research is also imperative for us to be taken seriously by the medical community - as many here know all to well it’s a battle just to get Doctors to understand the dangers of finasteride.

I made a $100 donation to the foundation recently and will continue to contribute as often as possible. I think many find it disheartening that there is no indication as to how much the foundation has raised and how much funding the research initiatives have received. If you have contributed to the foundation can you please post on this thread so that others can see that money is being received and may perhaps be inspired to follow suit and also donate. I’ll leave it up to you whether you wish to disclose how much you’ve donated. If you donate regularly please also say.

#2

I appreciate your comments, yes PFSfoundation.org is our best bet. I wrote about the org on one or two accutane forums to convince them that our and their issue is the same and get them to donate. I acknowledge I have donated very small due to my finical circumstances, I have not worked for more than a year due to this sickness. Can I suggest to contact big companies to get some donatation like Google, Apple, Microsoft and Gas companies? I think some one with good English and a convincing power can do this job very well. I can do and will do certainly if no one come forward but I hesitant to cause more harm than the good. Also again please if some one do this

1-Don’t cry or weep for lost Dick / Libido. People hate it. They will tell you to contact your Doctor/take Viagra and get lost.No body believes these kind of side effects so far. It is not still well known. I have seen many Doctors and they all think I have psychological issues. Instead stress Memory loss, Cognitive issues, Depression, muscle weakness, loss of sleep etc.

2- Once you wrote letters/emails mention the list here to keep a record.

#3

i donate monthly and have done since the foundation started,its our only real hope in my opinion,it would be nice to hear something about the recent conference in italy though,i think everyone on here was eagerly awaiting the outcome and nothing has come forward yet???

#4

I make regular donations (every month). I usually make $75,00 donations although the first month was a $50,00 donation.

As for the articles from Torino, I spoke with Mr. Santmann today (email) and they’re expecting to post information about the conference soon. There’s another thread here where I wrote this.

#5

Great reminder to all of us. I’ll be making another donation this week.

Happy New Year & and here’s to some positive developments out of the Foundation in 2014.

#6

Yes, everyone should chip in as much as possible to the PFS Foundation in 2014.

Think about this: If Dr. Santmann had NOT taken the initiative to set up the foundation and raise the money to get research projects under way at leading medial institutions, there’d be nearly a zero chance of any progress on the medical front at this moment.

But now, there’s a good chance that the results of the Harvard study and/or Baylor study will be published in 2014.

So at least the wheels of progress are in motion.

#7

Just did my first donation, 70$!

#8

First, KUDOS to those who have donated already.

To encourage even more donations, I think it would be a big incentive if we had a live (or somewhat live) running total on the site/forum?

Transparency about how much cash the foundation has is vital.

We could also have targets in terms of what the foundation could afford.

e.g.

$100 buys ___
$1000 buys ___
$10,000 buys ___
$100,000 buys ___
$1,000,000 buys ___
$10,000,000 buys ___

I’m not nearly knowledgeable enough to fill in the blanks, but you get the idea.

#9

This has been proposed before. Mew does not have access to The Foundation’s accounts.

Propeciahelp.com and The Post-Finasteride Syndrome Foundation are not one and the same.

#10

Ah right, fair enough. Did anyone suggest to the foundation then to put it on their site?

Apologies that I didn’t know the distinction.

#11

I’m going to write to the foundation to raise the ideas mentioned in this thread. It would be good if someone from the foundation can speak on their behalf. I suggest others write too: http://www.pfsfoundation.org/contact/

#12

what about this thing called crowdfunding
there’s peope donating money for others to travel, why not for this?