Thank you “noprop” but thank you “Frustrated” too for your words. But to be honest, a life without sex would be a horrible life for me. Especially because i want to have kids in future. I want to have a family… Im only 20 and i think its my fault too because i took it on and off. Every Month i took a break of a week. That fucked my hormones i guess. But this stuff is poison
Your life isn’t over @Darkparadise . There are a lot of guys on this website who have been sick for a long time who haven’t gotten better . They will tell you there is no way out just like they told me when I first got sick. But like many others, I have gotten better.
Fact is there are hundreds of guys who have recovered at least to a good degree where they are able to resume their lives rather normally or 100% in full.
19 months now after crashing and only one year after beginning treatment ( being completely impotent and worst mental sides imaginable before) I consider myself close to being cured. Maybe I’m not who I was before fin yet but sex twice a day isn’t an issue. Sex drive currently strong.
You must realize that the only people you find on sites like this are those that are still suffering. So of course it’s going to look like there is no way out.
Your life is not ruined. Hang in there. Read recovery stories. Read my posts. Read chi’s story, cdnuts.
It may take a lot of hard work and frustration but you can get better. And when you start getting better from something this horrible… life becomes so great.
Hang in there man and seriously start reading recovery stories for encouragement.
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Yep hang in there as you are still so young and hopefully you will make improvements over time. There’s also research going on and new drugs on the horizon. You might just have to a few years not at full sexual prime, but then you will be fine and will forget that pfs ever happened.
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This stuff is fucking poison.
You are very young, so even if it takes you some years to cure, you will be still young.
You need to research a lot what people did to recover at least partially. I spent hundreds of hours. Some blood and stool tests are important. Test for Androgen Resistance. Do a hair Mineral test. Check your liver. Then you know more.
And then go for different protocols. Intermittent fasting is for free and very helpful. You could also become member on another platform.
Contact bruschi for some protocols. He might be on a very good way and he has tried a lot of things.
Hey noprop where can I get a test for androgen resistance, would it show an over expression or AR? I’m very interested to find out because I feel like my skins now decaying body wide, the hyper elastic stretching of the skin and the lumps underneath I presume is wastage of the dermis or subcutaneous fat, that might explain why touch feels like someone’s poking me through a sock. I need to try work out what’s the issue because if I don’t there will be nothing left for me to fix.
Thank you guys so much. You are really kind! I hope that my life isn’t over now. You really helped me with your words. I hope i will improve over time. And i hope you guys improve over time too and there will be a cure for all of us in the near future.
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I fully agree with you, we should never loose hope and our courage. Hope is a key message of this site, and it cannot be repeated enough.
That is interesting. Could you share with us how these people got better, in as much detail as possible? Best would be that you start a new topic in the Therapeutic Efforts category. Great would be if you could provide some examples of guys who got better: How were they doing initially, what therapy did they follow and for how long, how are they doing now (btw, I had already asked you to provide this kind of information previously). You can then link to your topic from this one. Let’s get a good discussion going, right here on this site.
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Hi devolution, docs (andrologue, endo) should be able to do so. I think they can tell you if you have AR. Indicator is uprising Testo level, followed by decreasing levels. If AR, there is no sense doing TRT suppl. The opposite is the path. Best!
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“Fact is there are hundreds of guys who have recovered at least to a good degree where they are able to resume their lives rather normally or 100% in full.”
@awor I was quoted by you above leaving the rest of my phrase out. I bolded what I wrote above. I ask you to please edit your post quoting me in full.
I do not write that with any ill will towards you. But I would not like be quoted saying 100s of guys have recovered because that is not the case. We don’t have several hundred recovery stories on the internet. We have many improvement stories and yes I’ll say hundreds of improvement stories no doubt about that.
But there are about 50-100 stories out there where guys claim full recovery I’d say based on what I’ve read. I’d gather all these stories if I had the time to do so, but frankly I do not have that time with a life I now am lucky to live.
I will record my story in full when the time comes and write about my influences of course.
All the best,
Bruschi
No problem, I adjusted my quote - did not mean to misquote you.
If you have specific knowledge on how to cure this disease, share it with us - even if you don’t have time. I have a very busy life as well, even if I’m not cured - and also have no time. However, I do take the time (a lot of it) for this community, because the guys here matter to me, and deserve to be helped in the best way possible (in a situation were help is often hard to come by).
All it takes is one topic, describing the cure. That should be possible, even if you don’t have much time. Don’t you think? Look forward to reading your topic in the Therapeutic Efforts category.
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@awor I will certainly write my beliefs and theories in the Therapeutic Efforts category in the near future. I appreciate the privilege to do so.
But I cannot provide a cure for this syndrome as I do not believe there is one thing that can heal a human here. It takes a series of correct decisions in healing a person in this difficult situation we were thrown into. I have ideas and theories that have worked for me along with others.
Looking forward to providing my insights!
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Hi Bruschi,
Glad you’re feeling well. I’m surprised you’re posting the same thing again when you mentioned you wanted to share your ideas. You could use that time to spell out what helped you in a member story or the therapeutic category, as @awor suggests. As you’ll recall, despite claiming your ban was for threatening and swearing at other users (which was just coincidental behaviour), I banned you from solvepfs because you were extremely rude to me when I politely asked you to stop using the platform to recruit users there to an alternative health site. The same rule applies here - please spell out what has helped you in as much detail as possible on this site and not ask users to join other websites. Please read our rules regarding this here. If you’re short on time, write it bit by bit and share it then. It’d be a great help to users here who are interested.
Thanks.
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@axolotl people ask me how I’m getting better so I tell them I’m learning a lot on an alternative health site along with my own research learning from recovery stories from PFS amongst other illnesses.
That is not recruiting.
Honestly @axoloti what happened on solvepfs was a long time ago now and this was just when I was getting my life back. Of course I was angry with the naysayers on these sites. Of course I was horribly mad that there were guys out there saying there is no way out of the hell hole I was in.
I almost took my life because of my situation when I was ill and the evidence provided before me by the naysayers.
I remember being in a mental institution screaming at the top of my lungs “I’m going to kill myself in 6 months if these studies show I’m ruined forever, I’m not going to kill myself now!”
I don’t know why you are bringing up issues between myself and you right now. I wrote above to give a person help who clearly is struggling.
I find this appalling that I am being reprimanded for what I have written in this thread. I do not believe I should be treated like a child. I am close to 30 years old and went through a severely traumatic experience in the past 19 months. I am not the bad guy.
I’m just bringing it up so you know very clearly that the same rule applies here on propeciahelp. I take it you’re saying you were suffering psychologically at the time of that, but it was something you plainly refused to do, so I have to reiterate it here and wanted to provide you a link to the rules to look at so there’s no misunderstandings.
If you’re not asking users here in public or private to join other websites and wish to share your experiences on this website, as I said, that’s great and I look forward to you sharing your experiences with PFS in detail.
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By the way @Darkparadise , if you haven’t already it’s a very good idea to report your effects from Finasteride to your national pharmaceutical watchdog.
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I’ve read a handful of stories of guys who have been able to have children. I think the problem for most PFS patients is that they don’t feel sensation or orgasms or have the ability to get a full erection but I think it is still possible to ejaculate which is what is needed to have a child.
Even if you can’t reproduce yourself, which I don’t think will be the case, you can still make the most of your situation and adopt a child.
It will be harder to date and find a relationship but if that is something that is very important to you personally you will be able to adjust.
Take things slowly now and remember not to jump to any conclusions prematurely because you don’t know what is and isn’t possible.
Unfortunately, I have not found Bruschi11’s claims to be reliable. I have been aware of the reports of a lot of the PFS doctors and many, many patients and Bruschi’s claims that hundreds of patients “factually” recovering does not foot with the data points I have seen.
There is always the chance that you are suffering from some kind of treatable problem that coincidentally onset at the same time you started taking Propecia so it is worth getting checked out. It just helps to be mentally prepared that a lot of doctors may not understand.
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I’m now on Clomid and another medicine to improve my testerone levels. However, still not feeling any libido and erections, outside of popping lots of viagra or cialis is still dead and it’s a little less than a year from when I took procar for about 2 months only. I was wondering about CDNUTS cure… may give that a try
I don’t think a cure for sexual sides is likely, if you have libido then cialis/viagara should help. But if you just have 0 libido than you are kinda screwed because cialis only works when you have libido.
Some people reports sexual sides become less over time, but no way to confirm and varies from person to person,
I think brain fog etc will go away eventually, lots of reports of brain fog going away.
I’ve read quite a few stories on here from even severe sufferers of being able to have kids
I think ED and shrinkage is probably going to be for life
source: being suffering and on those boards for 7-8 years
When there will be no cure for sexual sides its okay. but i cant fucking read a book because of the mental sides. When they cant solve that i will kill myself
Well a possible cure would more than likely effect us systematically, it’s likely all of our issues stem from one issue, fix that and you’d see body wide improvements, that’s the hope anyhow.
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