I would say that I am not severely affected anymore but in my opinion; an incredibly low libido and commonly occurring erectile dysfunction is very serious/ severe at 19. I am managing to socialize with friends properly and study reasonably well though, so I do have SOME quality of life.
It’s still a very confusing period of my life, I don’t have much idea on what to do next.
I would describe myself as severely effected. I have crushing chronic fatigue and muscle wasting. This makes it very difficult to do much during the day other than sleep. I am also brain fogged and lack motivation to such an extent that I am finding it difficult to hold down any job. I aso cannot connect to people in social situations and have lost friends as a result of this. Not to mention ed/loss of lobido making any sexual relationship nearly impossible.
If i cannot find something to help my symptoms i may be the first person to die as a result of this without killing themselves (no joke). Also, if I cant work, I cant pay my rent and I will become a tramp. I give myself two years before this happens. 
thanks for replying.
If you’re a lurker really suffering please post as even if we can’t cure ourselves (which i think is possible) I wonder how many of us can lead near normal lives. Are the severely affected the average sufferer or the unlucky bastard?
I quit my job and now work 2 days a week. Luckily i brought a house before this mess started and can make money by renting out rooms. Otherwise i would be fucked.
Why aren’t you able to work? is it just the depression or is it debilitating for you in some way?
On Crisler’s video he says there have been suicides? is this true?
Wouldnt surprise me. I think alot of us consider it.
Fatigue and brain fog
It’s often in the back of my mind, and I do wonder what will happen if I am still bad next year.
But how does Crisler know this?
My situation is not different from Oscar. My physcial condition is very bad. Just like him I dont think I will live long. Unable to work, due to severe fibromyalgia and muscle loss, oesteoporosis, and disappearing of hard tissues from feet, hands and butt. My career has ruined, got demotion, was working as Network support engineer and wanted to write some Cisco certification but now it is a dream. Keeping my job with alot of efforts b/c I am scared if I stay at home it will be very difficult to cope with my condition and I may harm myselfe.
I have been through a lot of stress and detrioration. I have transferred my house and accounts to my wife just incase.What else I can do? Just pray to God make it less painful and turn me ( and all of us) back to normal again.
sps
I think we need a picture gallery on here or something to give proof of things like ‘muscle loss’.
I was on this piece of shit drug for a month (excuse my language) and I still feel the effects after two years. The only way I feel normal is if I take my vitamins which is Mens formula, zinc, complete mulivitamin, b12, b100 complex, and fish oil. These give me sex drive back if I dont masturbate at all and I take them for about a week, it starts to kick in. It makes me feel more normal I guess… But still I have a problem. I need the vitamins, or else I lose it, and I can’t masturbate. SUCKS.
I’m 22 also. I had this severe feeling of brain fog and I decided to rejoin this forum because I have had no sex drive for the past about 4, 5 days and it is starting to mess with me badly right now.
I agree with joe about the picture gallery.
My quality of life is severely damaged. I am not ready to quit my job over this. My job requires a lot of high level written and verbal communication, constant reading/learning new materials, and technical abilities. I don’t know how I’ve managed to maintain myself and manage projects etc. But I have. I continue to do the work and can see that it is at a slightly lower quality, but keep pushing on. No matter how bad it gets, I will never give up, thats just how I am made. Anyway, my quality of life is very low these days and I would consider it severely affected. I do have better days when I feel like there may be hope of a cure or recovery. As time goes on and I keep getting gradually worse, those days are becoming few and far between.
I realize im new… and possibly have a chance to recover still… 6 weeks off now… my life is severely affected.
cant concentrate… brain fog is terrible… sometimes i cant leave the house… no libido, ED, no feelings of joy or hope or happiness at all. extreme exhaustion… even the simplest tasks seem daunting now. muscle loss maybe starting? i seem softer and pastier… under eye circles and white bumps. skin under eyes and other soft spots on body is changing… bumps or rings in penis tissue that werent there before…
Luckily i own my own business, and work from home… still managing to do the day to day stuff… barely…
honestly, if it doesnt improve and stays like this forever, i will not last long. i cannot see myself being able to deal with slowly getting worse, like many of you describe it…
going to see Dr. Jacobs thursday… gives me a glimmer of hope…
Another one here. Severe brain fog, only countered to some extent by buproprion + reboxetine + aerobic exercise. Affecting my professional life big time: jobs that I can’t cope with, exams in which I struggle, relationships that fail.
Also, ED, impossible to get erections unless I manipulate my pennis, and sometimes I can’t even doing so. No libido, no attraction to the opposite sex. Last relationship a failure because of ED.
Bad sleep, extreme fatigue making me be a potato couch and sleep 12 hours, without energy to engage in social activities. Life sometimes overwhelms me, and it didn’t before finas.
What else… many of you guys are going through that or more!
No quality of life. Used to have my own business. Quit and moved back in with parents. Too depressed for words. If it weren’t for them I’d be dead right now.
My problems aren’t so much the sexual dysfunction(which I do have) but the prostatitis, which it seems I’ve had as bad a case of as anyone on this site. It is debilitating. I cannot imagine living with this for the rest of my life. The majority of my day is devoted to dealing with urological issues. It’s not good if you aren’t able to empty your bladder completely when urinating.
The worst though are all the strange, mysterious health issues that seem to arise weekly. I can never quite tell whether they’re fin related or not, but I was an extremely healthy person 7 months ago(before I started fin).
I have become very unstable with fatigue. Some days I’m ok, some I can barely get out of bed. I rest most of the time so I can keep up with my girlfriennd when she is not working and even that is hard. I quit my job which I think I was going to lose anyway because it was taking me too long to accomplish simple tasks, and after I would work I couldn’t manage a girlfriend too. I’ve become much less intelligent and dynamic.
I simply have no more joy in life, nothing interests me or gets me going. If I’m lucky enough to be able to have sex every other day I’m usually not lucky enough to feel anything. I used to live to travel now I’m living overseas and I just don’t care.
I also have constantly tight muscles and they get worse with exercise but I keep forcing myself to.
So 1, and apparently down to surgery? fair enough, very sad to hear. I just thought there might have been more about it on here.
From what I’ve heard there were some suicides on the old Yahoo group, which is what Crisler was referring to.