I’ve moved your topic to this existing one by the way @Demon, forgot to mention . Yes, I react badly. It used to be nice and I would very rarely burn if ever. As a result of PFS my skin, which is very different, quickly burns and does not tan the same. I feel rapidly worse in direct sun. As an aside I’ve also reacted badly to vitamin D supplementation. Some members have reported positives from sun quite often - it’s often suggested by people giving their ideas. At least one person moved to a sunnier area if I recall from my initial read of the forum. I have also noted many bad reactions reported from other cases, particularly those more seriously affected.
@Tzinkman notes above he has had success with high factor sun cream which would make sense. Perhaps this could help if avoidance is difficult.