Having kids

Ok,
I have been getting a lot of emails lately about how my kid is doing, so I figured I will post update. My wife and I conceived a child (boy) about six months post PFS, he was born in February weighing 9.8 LBS and so far seems to be perfectly health and happy everything appears normal with him. I know it has been mentioned on here several times about this condition being passed on, I have asked one of the researchers involved in the studies if I need to worry about this and his answer to me was " not all epengenetic changes are inheritable and that it still has to be determined in are case as well as that I shouldn’t worry about it all will be well" so coming from him I really am not to worried about it. I will however make sure I didn’t give him anything that effects/acts on andgrogen expression (soy foods etc…)

I am really pretty much writing this to let everyone know that it still is possible to have children, yes this condition is really disabilitating and makes you really lack love for humanity. There is one thing I can assure you is seeing you own child happy and smiling, it makes your worst dark days just a little more brighter. I by no means am saying that it makes it easier it just makes you think about your life a little more differently.

The research aspect of things into this condition are really picking up, hopefully by the end of the year we will know a lot more. We really need to contribute all we can to support the foundation and if you can please volunteer for the studies.

Airborne

I read this post and just wanted to say it was an interesting read. Hope your boy remains healthy and there is no reason why he should’nt be.

At least you have him to focus on.

Best of luck and enjoy family life.

Airborne great to here you have a healthy child. I am however unconvinced that our condition has not been passed on until a boy develops through puberty the proper way.

Thank you, I really really really really x infinite times hope one day I can hold a son or daughter in my arms.

Congratulations on finding a piece of happiness in this hell.