We all know how hard it is to try and explain PFS to a doctor.
I was thinking that if a PFS patient could donate say $50 to the PFS foundation then the foundation could contact that persons GP directly and explain to them that PFS is real. Getting a phone call or a letter from another medical professional in the foundation may be the only way to convince doctors that PFS is not some made up condition.
It could also bring in a lot of donations for the foundation.
Decent idea Mark but I think it would be asking a lot of the PFS foundation to contact individuals Doctors by any means, such as post or email.
My Doctors doesn’t even have an email address they are willing to give out.
Thats were the donation comes in so it would not be wasting their time they would also be raising awareness of PFS.
I mentioned $50 because I think everyone should be able to afford that but I would pay up to $200 if the foundation could contact my GP explain to him that PFS is real.