You are seeing a specialist?
hello Strider, did you overcome the tinnitus? Im having real trouble with it, its been lasting for three weeks now.
Try 4 months now.
hey Johnny,
how are you coping?
Very very badly. I see everything in terms of pre and post crash now. You?
I fully understand brother. I am currently in for the ride of my lifetime.
Quitted the poison three weeks ago, experiencing all kinds of weird stuff inside my body.
From aches in my balls/legs, joints and muscles to tinnitus in my left ear.
Trying to make sense of what is going on inside my body, this drug is disastrous even after discontinuing, rather it seems to add more symptoms the longer youāre off it.
Trying to stay positive by thinking that these symptoms are a part of my body trying to get back to the pre-fin statusā¦
Did any of your symptoms/side effects diminish over the 4 month period?
No, none. They got worse. Considerably. Family dismissed it as mental difficulties as did doctors. I am now lockdown, isolated, and with no support or way out of it. The fact that various people with PFS insist on wildly different ways forward is also maddening.
Thats awful. I am curious to know, did your symptoms start after quiting the drug or while you were on it?
It seems like people are worse off than while on the drugā¦
@johnnyzenith Your member story says you quit Finasteride in 2017. Did you quit then but crash 4 months ago or is that a typo? Just trying to work out the time frame here because if youāre āonlyā 4 months into having PFS, I would tell you that many patients (myself included) report substantial improvements in some symptomatic domains in the 6-12 month period after crashing. I understand what you mean by getting into a spin trying to work out a therapeutic way forward based on self experimentation from forums and my advice would be to just give it more time. Above all other considerations, time seems to be the most consistent factor.
My crash happened end of 2017. Deterioration is all I have had. Constant deterioration. My body and mind are dying from excruciating pain and fatigue. You never want to feel this. Iāve spoken with others and I seem to be one of the very worst. If there are inconsistencies then they are down to typos and exhaustion. Time is something Iām running out of. Oh and when you get this bad you become isolated and nobody believes how bad you are.
I was largely fine for a month or maybe a bit more after quitting then my body crashed.