Do you think there are people who have PFS but don't know

General Discussion
#1

I wonder if some people have PFS but don’t know what it is, since even if they went to doctor they’d say they are fine.

I also wonder if anyone recovered from this that never posted on here bc they didn’t know they had “PFS”.

I mean with the internet so prevalent its hard to think it could happen, but who knows.

But i didn’t know i had PFS until about 2 months after i crashed. I thought it was just depression and horrible stress. Although looking back now i have no idea how i could even think that.

#2

I guess these kind of people are in million all over the world. I was in dark for many months before discovering through internet. Not everybody uses internet.

#3

Why would you have any reason to think some random drug you were taking from hairloss would cause severe psychological side effects. Especially when the drug manufacturer had intentionally omitted this information on the product label and misled doctors into believing the drug was almost entirely safe.

I’m sure there are many PFS patients that are suffering unknowingly. It took me awhile to fully realize what was going on and for a point I thought I was just developing schizophrenia or losing my mind. It can be absolutely terrifying to be experiencing that and be told by psychological specialists you are suffering from typical stress.

#4

I am sure if a fair survey is done through newspapers or TV The medical community will be surprised to see how many people are suffering.

#5

To answer that question, OF COURSE, it takes a special kind of person to put 2 and 2 together, most men think they are just suffering from low T. In fact I know someone I sent to a dr friend of mine and his testosterone was 1050 after going on testosterone but he said it wasn’t working for him. BTW, he has a full head of hair in his late 40s, but it looks like he is thinning and tried to save it if you know what I mean. He is a very depressed looking guy who doesn’t gain any muscle, undoubtably there are a zillion guys stricken by this. That is why I intend to refocus my efforts into HRT doctors, they MUST have had experience with guys with PFS and got them better not knowing that it was PFS. I am not saying any can cure me, but I have managed to manage my condition somewhat with hormones, maybe one of them has some insight that can help, or perhaps better yet, experience. My HRT doctor said I would get better in a few months, and I did start getting better and guess what? I fucking started taking propecia again because I was losing hair, crashed again. I only took 2 0.5mg, but I thought maybe I didn’t have PFS and maybe it was the Avodart still in my system and having worn off. I try to be positive about this when I can.

#6

Possibly more than likely though - there may be people out there thinking fuck it i’ve lost my dick might as well keep my hair.

#7

I really believe everyone who uses finasteride is going to experience sides (slightest at least) and if they quit they will experience persistent symptoms for some time. It is Maths. They just have to pay attention if they are not evident.

If you take that drug your DHT considerably decreases as well as lots of neurotransmisors and other hormones related to it are altered (and very probably other unknown actions yet). Logically the longer you take it the more your tissues which are controled by DHT and related particules suffer. What happens is that its effect is different in any person that’s why some people have supposedly no, mild, moderate or severe
sides.

I guess the more “masculin” you are (the more your body needs DHT and the more masculin psycology you have) or the more sexually active the more likely to feel sides while on the drug. And the “worse” (more vulnerable for unknown and known reasons) inmune and neurohormonal system the more likely to suffer PFS.

So they are lots of factors not to be aware or reckon sides while or post-finasteride: merely by not relating symptoms to the drug or relating them to other circumtances or not knowing that PFS exists(those 3 reasons in average), because you are reluctant to talk about sexual sides, because you are ashamed to have poisoned yourself, because your sexual life is poor and don’t really alarm you your sides, because you care more about hair than your dick, because the sides in you are very light…

Regarding if there are people out there who recovered from PFS and didnt know or tell, yes. My two urologists told me that they had treated like 3 or 4 patients who took finasteride and experience persistent sides and they little by little went ok (maybe Not 100%)naturally and/or with Cialis aid (and that’s only 2 doctors in a little area). Furthermore I have talked with some guys from hairlosstalk.com who recovered considerably and never came here to tell. I suppose most people recover though it is hard to get past 100% so you deal with every and now problems the rest of your life (almost like a normal person). I talked with one guy from propeciahelp sufferer for years and now he says he is 100% mentally and 80% sexually cured. He is fine, but he has not recovered his total penile size. He never came back to inform.

#8

I’m new to this forum but I’ve been suffering from PFS since 2009 and had no idea until a few weeks ago. I have all the symptoms discussed on here but never realized it was connected to finasteride, I always thought that finasteride side effects went away once you stopped taking it. Now I know better. I went to plenty of doctors who couldn’t figure out what was wrong with me and were fairly dismissive. It was only dumb luck that I came across an article that discussed long-term side effects of finasteride, which then led to this forum.