To make everyone aware here, a number of posts have been edited and one deleted for flouting the rules regarding civility https://forum.propeciahelp.com/faq#be-civil. Everybody here is free to express their opinion on the feasibility or wisdom of the OP’s approach in his story but please remember to keep it respectful.
My own view on some of the conversations taking place in this thread: we are an incredibly vulnerable patient community, some of whom have been left in a shockingly damaged state by this disease. Despite suffering from such a devastating physiological disorder, with its remarkable symptom scope and levels of severity, we are not only all but abandoned or dismissed at the clinical level, we are extraordinarily attacked and smeared as delusional and having personality disorders in peer reviewed, published articles. I cannot think of many other patient cohorts who face a similar set of conditions.
Given these conditions, it is understandable that people here are eager and excited when they hear of somebody claiming to have recovered from the disease, particularly when it’s from “doing something” and something relatively simple in application. I would warn that speaking of “sensitising/desensitising” AR receptors is a very simplified way of describing very complex biological processes and manipulating one’s endocrine function in this way could have many unintended consequences and leave patients in a worse state. Just because it apparently worked for one person, it obviously doesn’t mean it will work for everybody (I think people here know that anyway).
Like some in this thread, I think it’s healthy to be skeptical when somebody joins the forum with no previous history here and has one post claiming that something they did cured the condition. As a moderator, I see the amount of times I and others on the team here see an account turn up from the same IP address as an existing account but the person behind it presents themselves as an entirely different person. These accounts are quickly deleted and so the community never knows it’s going on. People should be aware that it’s not unlikely that somebody with PFS could claim to be cured from a treatment that they theoretically suspect could resolve PFS but don’t want to be the guinea pig to try it. Or that somebody from outside the community with an interest in it could post their theory (masquerading as a patient) and wait for real patients to try it to see if it is correct. A near-100 thousand subscriber Youtuber recently released a video on PFS and a “reversal” protocol on his website which was very keen on using Proviron for endocrine manipulation (I’m not linking it here as it isn’t credible and potentially dangerous to patients). I’m NOT saying the OP is doing that by the way, just asking people to be cognizant of these things.
It is not right to be only cynical either however, so with that said, welcome @pal and thank you for sharing your story. It is good to hear of somebody who had the condition for so long is now free of symptoms.
