Constant living in fear

General Discussion
#13

If you want to give me a call, i’ll be down for it man. I was in a state of death when i crashed, i couldn’t believe it, couldn’t believe what was happening to me, but now. I’m doing way better, and i want to keep getting better. I just want people to know, you have to keep believing, and keep pushing yourself, don’t experiment with heavy stuff because you’re desperate, go natural.

I tried a liver flush sadly, and it regressed me sexually and physically in terms of physical touch (body feels rubbery again). I don’t know exactly why this is, but yea. I’ll be restarting my past regime on monday again because my digestive system is still prone to sensitivity.

#14

Interesting. The pain is excruciating which is why I was hospitalised twice, it’s as if I have been burnt in a fire and it doesn’t go away no matter what pain meds I take so that’s why I say I’m probably the worst case on here as this alone would disable you and I haven’t met anyone here with the same condition. 20 times to A & E screaming and crying in the waiting room with the average waiting time being 10 hours to be seen by a doctor and told there’s nothing they can do. So you have seen improvements Yusef?

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#15

Are you able to exercise at all? I’ve heard some people say they can barely do 2 pushups without there muscles being in pain for hours afterwards

#16

No, I can’t exercise at all mate I was a baller in the gym before this shit and I miss the buzz from it.

#17

Try and do one push up a day its better than nothing, a lot of guys on here might say to wait for a cure but there isnd a cure yet and we don’t know if there will be one, no one cures peoples MS they just wait for the person to die same thing with us. This thing only beats you if you throw your hands up and say you cant do anything about it but you will eventually improve your quality of life if you try hard enough. 1 push up from someone who struggled is better than 100 from someone who didnt break a sweat. I had to make my life completely about getting that next 1 percent anyway it was possible.

#18

Thanks mate gotta keep a good mental attitude or the body won’t heal.

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#19

I’m 135 pounds 7 percent body fat and still fighting digestive issues and i’ll find a way to fight them harder even if it seems like there is not an ounce of fat that can leave my sibo starved body anymore i’m not going to put up with it. I’ll kill this trash bacteria even if i die trying because living with it is not an option. Its not starving me i’m starving it. I’m out here trying to break a sibo speed record not take 4 years to be rid of it.

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#20

I’m eating all the junk of the day and I don’t feel any less better as opposed to eating healthy in fact I felt better yesterday than I did since PFS.

#21

It wasn’t as bad, i had a constant burning sensation throughout my entire body for an entire day when i crashed, called the ER but they couldn’t help. After that my nerves felt like they were burned off, couldn’t feel anything, completely numbed, but throughout the weeks it got better.

#22

What’s your suggestion on gaining fat? I’m currently 7% and 68kg - I want to build up before going for a fast

#23

If you have sibo your doctor should give you an antibiotic and you can gain a lot of weight while your on it and fast afterwards. I was just thinking i should try and gain 7 pounds then fast 3 days? How long have you fasted for before?

#24

2 days is my max, i wan’t to build up to do atleast 6-7 days.

#25

Same i think i’ll try and gain 7 pounds and fast for 3 afterwards because if i keep not killing it i’ll be emaciated anyways and i really almost had it last time which was my first course of antibiotics too. All these weird syndromes and conditions dont seem to be able to benfixed by a doctors interventions alone. I wish there was a cure for these things but it seems we have to overcome this stuff at least partly on our own if we ever hope to live our lives normally.

#26

Many here have had nerve pains in limbs (use the search option) and other areas of the body. Nerve pain doesn’t mean permanent damage at all. Many have had nerve pain during some time. In fact, nerve pain can be caused by the central nervous system, it doesn’t necessarily mean that you have a peripheral neuropathy.

#27

I had MRI’s and a lumbar pucture there was no sign of anything wrong with the CNS from two neurologists point of view. I have peripheral neuropathy in my hands and feet- the burning never stops, taking finasteride triggered an array of symptoms and I also tire out extremely fast even from brushing my teeth. It has disabled me for sure

#28

You don’t know if what you have is a peripheral neuropathy, you should do an EMG of the parts where you feel pain.

The fact that you had an MRI done with no results doesn’t mean that your pain isn’t being caused by your central nervous system.

#29

What was your CSF pressure?

#30

I agree this is soo fucked up. I simply lived before. I ate ice cream, I ran, I shit, I stayed up till 4am I went to bed at 8pm, nothing mattered before. I always felt normal, High libido, Good erections, Genitals weren’t numb and cold.

Now I have to watch I dont take zinc, or eat mushrooms, or blink…

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#31

I don’t know what that means but they checked my cerebral spinal fluid and nothing was showing. All these symptoms started manifesting 4 weeks after I thought I was getting better from finasteride I got an upper respiratory infection and that’s when my world turned upside down I’m genuinely surprised I’m still alive from what went through I was also under enough stress that would kill a horse while sick so I know my adrenals are absolutely fried.

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#32

I refused to live like that I’ve read 2 recoveries on here one by John Coleman who said he did fuck all drank, ate pizza and recovered after 2.5 years. I’m at the point that I know my adrenal system is fried as I have zero energy even strugglin writing these msgs. If I recover 60% from this I’ll be happy I’m no longer dwelling on the past I know I can’t change the fact I took that poison and that is the hardest thing to come to terms with.

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