Do you think the second study will start before end of 2012? How are you getting funding for this? Private donations? Grants?
Hopefully.
Stay tuned.
I’m really interested in reading the first study when its published.
Can what has been found so far attempt to explain to any degree why some men get PFS while many do not at all?
Thanks.
We are looking into that, but don’t have results on that one yet. The hypothesis is, that the answer to your question lies in our genotype, i.e. is determined our genetics. We have some cases where both child and father are affected by this, representing evidence that there is a genetic link.
That is both incredible and horrible at the same time.
Father and child? I’m assuming you mean like a 20 something year old son and a 50 something year old father right?
Or do you mean that the newborn son inherited the problem caused by propecia in the father?
What do you mean ‘we have’ are you referring to members of this forum?
I speak to a guy on here who’s dad takes it with no issues
Ever see a blue eye’d parent with a brown eye’d child? Could be the same thing here, depending on the trait that causes this one or both parents might have to be the carrier to pass it on and it might be a dormant trait in some people even though they carry it. Hypothetically if we are genetically vunerable to it, that is how many things genetic work, kind of a like a lottery.
Interesting. My grandfather had prostate cancer. My father has a swelling of the prostate and had to take propecia to shrink his prostate. My father suffered no signs of side effects though when he took the drug (I asked him).
Perhaps propecia effects younger people who have a genetic pre-disposition to prostate cancer? Awor your thoughts? Look forward to the study.
BTW I have made a complete recovery. I have been suffering for 7 years. I was 19 now 26, completely healed.
The last two years I have been cycling T3 and my metabolism is back to what it was when I was 19. My hair actually fell out when I took it and now its thick (classic sign of a thyroid condition)
I can have sex 3 to 4 times a day. Orgasms are great, numbness is gone. No depression. Alert as fuck. Im my case propecia triggered hypothryoidism amongst other things.
Why I am better?
(a) time - 7 years my body has corrected itself
(b) cycles of T3 over the past couple of years.
© combination of both.
After going through this and now that I’m better I feel like I can do anything. I’m lucky Im still now relatively young.
From what we know so far… I think a potential treatment could be T3 + an HDAC inhibitor.
I actually did see sme improvement when I took T3 in low doses for a month. But I didn’t get the benefits until a few weeks after I discontinued use.
cgj1,
what exactly have you done to recover. What dose of T3 have you taken? What else have you taken?
Thanks for your help.
Pm me I dont want to de-rail awor’s legendary thread
Mew, please put this man in Cooperstown. (Recoveries section)
[edit: cgj1’s member story has been added here: viewtopic.php?f=3&t=6381&p=54094#p54094 ]
I don’t believe that there is a age component to this. Young people just tend to be more concerned about their sexual health than 70 year olds (and don’t believe everything doctors tell them, such as “it’s all in your head”).
About prostate cancer, let’s put it this way: It is likely that learning about the mechanism of PFS will be a benefit to cancer research at large, because presumed implicated epigenetic mechanisms could be similar. The next study, which is in the works, will give us more insight in that direction. If the link would turn out to be true, funding future studies with public grants will become a very realistic option.
That is EXTREMELY inspiring, it’s always good to hear people come back and report that they are doing well.
Despite all the bad regarding PFS, the core problem clearly seems to be reversible. In some cases the bodies seem to have figured out the way out of this mess by themselves. In others, some help was needed. This essence of what this thread is about is to find out, through scientific investigation, what is going wrong - as opposed to “guessing” or “believing”. We all hope that this knowledge will give us a better vantage point to determine helpful treatments down the line. Hopefully, we will thereby have many more such positive reports at some point in the future.
Awor,
it is really good to hear that people recover naturally even after such a long time. However, others (including myself) will never recover unless they get medical help. Unfortunately, all we can do so far is trial and error with different meds/supps/treatments. But this is risky as it can even make you worse (I have made that experience). It is a dilemma.
I’d be interested in some clarification on this as well please. Thanks.
There have been a whole lot of posts since I last read this thread so it may have been asked before, but lemme get this straight anyway. So if any of us affected by PFS will have children in the future, this crap will be passed down to them? Or will they be born with deformities possibly? How should I see this? I don’t quite understand this part.
If so that would be devastating, I wouldn’t wish this shit upon anyone, especially my own future offspring.
Hey, could you please let me know how to do this: cycling T3 ?