Thanks for the reply John.
Should we take it that you would rather not be the person who contacts the agency? If you have made a good contact there, then they might listen to you more than they would a stranger. But if not, no problem: I’d be happy to get in touch. Do you know of a particular person or department we should contact?
I agree with you; I think the points we’d want to cover are:
Are you aware of anyone currently interested in or researching persistent finasteride side-effects? Would you be happy to make approaches to them in combination with us?
Given your new ruling on Propecia, are you aware of anyone who would now like to start to investigate? Would you be happy to make approaches to them on our behalf?
Does Merck have any responsibility to facilitate or fund research on this matter? Can you play any role in causing Merck to do this?
What are our legal rights in relation to Merck, given that this side-effect was not listed when we took the medicine?
And we’d certainly make clear that we have a large pool of potential case studies here.
While you are here, can I also ask about your experience with Propecia? When you took it, what side effects you experienced, if you have seen any improvement, and if you have taken any treatments/seen any doctors that helped? Again, if you’d rather not answer then of course no problem.
Thanks again for bringing this to the boards.