If the UK has 50 eligible people let’s get them over here!
I am pretty damn surprised we can’t get 25 members from the US to sign up. The severity of your symptoms doesn’t matter so much correct, just the persistency of them?
If you live within a few hours of BWH or Baylor and haven’t found out if you are eligible then that is inexcusable. I mean, is this not deadly serious for most of us? It’s life and death for me at his point.
I think the recovery section is a distraction for people. There is clearly no such thing for people that have PFS. After looking it over it’s clearly a way to get desperate guys to buy nonsense products.
How did you get better? Is there a thread where I can follow your protocol?
BizzBee33 has a point. Most guys here walk around all day with a gun in their mouth. Look at this forums thread titles - “thinking about killing myself” “does it ever get any better” “i cried into my pillow all night”. For fuck sakes. They bitch, they whine and most importantly, as far as I can tell, don’t take ANY action to get better! They don’t try any drugs, supplements, exercise, fasting protocols…whatever!!
I have a hardcore case of PFS (90 year olds libido, no erections), unrecovered, but have been through much worse in my life than PFS. PFS is a joke compared to what I’ve been through. It’s a weight, it’s not fun and ya, it really sucks. But I don’t walk around all day contemplating suicide. Some of the guys around here really need to man the fuck up. If PFS is the most adversity a persons faced in life, they’ve had a pretty fucking easy life.
Case and point - CDnuts recovery thread. How many guys here replicated that protocol? None. Zero. Zilch, afik. It’s pathetic. People don’t do shit around here except whine all day. Ya, there are exceptions, but very few guys ACTUALLY TRY ANYTHING TO GET BETTER.
We all need to take a no holds barred attitude to this and guinea pig ourselves to get answers and improvements. The harvard study sounds great. Except I’m broke and live in Canada. Some of you American lazy-asses will have to do it. Sorry.
I find some of your comments to be despicable and deeply offensive.
PFS is a joke compared to what you have been through?
Cute. Very cute.
People like you drive others away when you do these things. Try to be a team player and not insult others who are suffering mightily and have lost their lives completely. While I myself am far from perfect, what you have done here is just bad form.
Please remember, there are many very young, very frightened people here.
If you are broke, then contact the PFS foundation to see if they can provide financial support for your trip.
Without getting into a pissing match - I am in the same boat as every guy here. I speak with authority on PFS because I have pretty much every single symptom going on 8 years now. It’s taken a huge chunk of my life and flushed it down the drain. Do you see me with a gun in my mouth? NO. Now grow up, bitch. And get on to the work of GETTING BETTER.
As far as me “helping”, unlike the cry babies this board is littered with, I am actively trialing all sorts of treatments to get better. I am contributing to the solution by contributing to our collective knowledge through anecdotal experience. Are you? Are you doing anything except clapping your gums together? The Harvard study. Thanks for the suggestion. Have you taken your own advice? Joined the harvard study and sought financial assistance frm propeciahelp? Or are you just another peanut gallery hypocrite who tells others what they should be doing when they don’t do shit themselves? Because that’s about 80% of the guys on this board. Which one are you?
The point is at least Bizzbee is TRIALING things to cure his condition. And apparently having good success.
That you don’t like his attitude or the platter it’s served on??? FUCK YOU. I couldn’t give two fucks if Bizzbee spat in my face all day, so long as he gave me a cure. That’s all that matters, dummy. Not that some guy on some internet board wasn’t all sweet and nice to me and wiped my ass after he gave me a cure. Us holding each other and crying into our pillows is not a cure. It’s not going to move us forward. That you and others like you need a space to lament and be depressed all day, is counterproductive and stupid and sign of total immaturity. There should be a support section where all you guys who wanna feel sorry for yourselves can give each other hugs and cry, and leave the rest of the forums untainted by your self-fulfilling garbage. This is a major life lesson here. Feeling sorry for yourself doesn’t do anything except hold you back. Do you even understand that? Am I speaking to an adult here? Or a 21 year old frat boy?
I have traveled from California, and I am in Boston as we speak.
I turned down any and all financial assistance from the PFS Foundation, and got here by selling off some of my personal possessions.
None of that matters, however. The only thing that matters is that people do not allow themselves to become distracted by people like you, and that they do the very best they can to participate in the current research, as it is absolutely vital to all of us.
Again, you are being disruptive, and I promise you are not helping anyone with your line of thinking, including yourself.
I will remind you, there are many very young, very frightened people here, and personally I would appreciate if you could tone it down to a respectable level.
I am sorry you are suffering, and I truly hope you will feel better.
Tumbleweeds-
The point isn’t whether you are “trialing” new things as you say…that doesn’t necessarily help and can actually make things worse. I don’t “trial” new things because honestly, I’ve reached a point with my mental sides that I can hold down my teaching job, and I don’t want to “trial” anything that could set me back and take me to a worse mental state. Reading some of the “recoveries” - that exact thing has happened.
For you to belittle those that are suicidal - extremely tasteless. We have quite a few PFS suicides, and I myself was suicidal at one point. And trust me, I am not a “whiny bitch”. Its part of the syndrome. It makes you think about things you never would have thought of.
My main problem with Bizbee is his lack of desire to participate in the research/donate to the Foundation. That is PERVASIVE across PH…and I can’t wrap my head around that attitude. I realize he acts like a dickhead and insults others on this platform, just like you have as well, but I am afraid quite a few guys have a similar attitude as he does, and the likely end results is that we keep our numb dicks/90 year old libidos until we die. And don’t tell me the shit BizBee bought at GNC to “cure” him is the answer…the guys pushes products like a pimp pushes his hoes…
The other thing that Tumbleweeds has wrong is that someone contemplating suicide is somehow weak. That is the furthest thing from the truth. He talks about how “tough” he is because he never considered suicide…if you go through history some of our greatest leaders were suicidal/depressed for parts of their lives…Lincoln and Churchill come to mind. Is Tumbleweed suggesting they aren’t “tough” like he is?
You have no libido and no erections and called that “hardcore pfs”? Do you have tinnitus? Light sensivity and night blindness slow motion vision? Extreme fatigue? Extreme face and body atrophy? Constant brain fog? All sexual sides? Do not underestimate pfs please.
Great. You are a MAN. Thank you for participating in the study and actually contributing towards a solution. More people should follow your lead.
As for “frightening” the little children, they aren’t children. They’re grown men. It’s time for them to act like MEN and grow some balls.
Good luck and keep us informed on how it goes.
Have you joined the study?
We’re both entitled to our opinion. Expecting a natural recovery happens in some cases. It also doesn’t happen in many cases. I am in the later camp, going on 9 years. It’s in my best interest to trial products as in my case, things don’t get better. AND I have found one or two things that are effective at treating some aspects of PFS. Does that interest you? A solution to some of our problems? As I’ve mentioned here several times, I took an OTC herbal product back in 2009 (no longer in production) that reversed every single symptom and made me feel great. That is proof herbal products exist that can reverse my symptoms. That’s all I care about. Finding a solution. Not coddling frightened children.
No libido check.
No erections check
Some tinnitus check
Major fatigue check
Facial atrophy check
Constant bad brain fog check
How about no drive? Poor sleep? Constantly going to the washroom at night? Like 4 or 5 times, with little pee coming out? Low testosterone? Poor mood? Low well-being? Dripping after a pee? Horrible memory?
Is that enough? Or do I have to cry into my pillow at night and put a gun in my mouth before it’s “serious”?
Nobody gives a fuck brother. We have to find a solution on our own. All these preliminary studies are designed to IDENTIFY A PROBLEM. We are years, if not decades off from a solution.
I read something a knowledgeable poster had written on another message board in regards to PFS - science is good at turning things off in the body. But not turning things on. Fin turned something off in our bodies. Now science has to figure out what it turned off and how to turn it back on. That’s gene therapy. Gene therapy is in it’s total infancy and PFS will be one of the last diseases in line to get a fix since it effects relatively so few people compared to other major killers with very little awareness out there.
Start trying shit on your own or do nothing like everyone else here.
Yeah that’s it you little paranoid punk, those in recovery are all getting a slice from the supplement companies. Show us this “recovery” section of mine where I’m peddling these products. I don’t even have a “recovery” section you lying scum-sucking fucktard. This little punk was in the wrong by harassing me over a private message and now he starts a whole thread just about me and what a dickhead I am so he can supposedly “ruin” my reputation on a forum in which I don’t give two fucks what anybody thinks of me anyway. I feel so special. You’re fucked.
Three things
There is no line in science. Its all about the money. The more money you have, the more research gets done. In order to get money, we need to prove that this drug did this to us. We do that - by participating in the Harvard/Baylor research - and we will get our money for our cure in court.
The bullshit this guy and bizarro twin spout about is untrue, dangerous and potentially giving men reasons to stop funding and/or participating in the Harvard/Baylor research.
Mew - can we ban these guys? They have already said they “don’t give a fuck about us” or “they aren’t part of the team” etc. yet they keep posting bullshit. Since they can’t quit the site, maybe its time for a good old block - get their non PFS asses out of the forum…
Wtf are you talking about? Are you on crack? The research is great and I support it, dumbass. Because you don’t like how people talk to you, you want to ban them??? Go fuck yourself. Seriously, grow the fuck up. The only one crying about being mistreated is you. I wrote one paragraph in this thread that people here need to man up and grow some balls and face this demon head on. We’re all going through the same shit.
This is a joke right?
With all due respect, that is one of the dumbest things I have seen written on this site.
For a variety of reasons, PFS has got to be one of the absolute worst things someone can go through.
I’d rather have my legs chopped of at the knees. Seriously. I’d grab some fake legs and carry on.
There’s many things that would provide me “adversity” that I’d rather go through for sure. This PFS shit puts all kinds of things I used to think were “adversity” to absolute shame!
I kind of wonder about the people who haven’t at least thought of suicide or made an emotional post here.
I don’t want to get into an argument with you tumbleweeds. I’m totally fine with people wanting to try their own protocols. But for you to bag on people because they’re emotional is really unwarranted.
Edit: check out this study tumbleweeds: http://www.ncbi.nlm.nih.gov/pubmed/22939118
It states that, “Suicidal thoughts were present in 44% (27/61) of the former finasteride users and in 3% (1/29) of the controls (P < .0001).”
So, the emotional posts you see here are a direct result of what Finasteride does to some of us.
You have no idea what suffering is. A bunch of depressed guys with limp dicks and soft bodies is not the worst thing in this world. I’ve worked at a cancer hospital and I’ve seen small children go through cancer. That is much worse. You’d rather have your legs chopped off? THAT is the dumbest thing ever written on this site.
First of all, you don’t know me, so how do you know what I’ve been through? That is completely rude and uncalled for. Second, I’m sure many on this board would argue that having PFS is a type of suffering.
Did I say it was? Nope, I didn’t. But of course, most of us know that PFS can be much, much more than limp dicks and soft bodies. I’m not sure why some people want to downplay this.
That sentence makes me wonder. I mean, that sounds like something I’d see in the comments section of one of those hair loss sites where people don’t believe in PFS.
Wow, I never said children going through cancer wasn’t worse than PFS. Good job completely misinterpreting my post. Please read it again and you will notice I never said anything about PFS being the worst thing a person could go through.
And yes, especially if my side effects are permanent, I’d rather have my legs chopped off at the knees. Let me say it again: I’d rather have my legs chopped off at the knees than have the myriad of side effects I have. Especially the ones to my eyes. Tell me bizzbee, would you rather have your vision or your lower legs? I’ll wait for your answer.
Eyes or lower legs? I’m pretty sure I know what most people would choose, but apparently you would chose your lower legs.To each his own.
You must have been half asleep when you replied to me. You completely misconstrued what I wrote, and are unbelievably defensive about a post that wasn’t even directed at you. I’ve no interest in arguing with someone who cherry picks pieces of someone’s post and twists it to make it appear something it was not. Please don’t do that again.
this thread is a waste of time guys. if you’ve been here as long as me… this ego bashing, fighting, you begin to realize is a waste of energy… put everything towards research and advocating the foundation… everything else, this negativity, does nothing for the greater good.
delete this thread mods…