I bet not a single doctor will be left out of that list in Canada and USA and if u give that option to doctors they allwill send us to mental hospital yes that is a pity. I have changed many doctors and they don’t listen they believe what is not in thier text books does not exist.
Yeah. I think the vast majority of doctors are pretty clueless about this, so a “wall of fame” would be more informative than a “wall of shame”. Sad but true.
In a way, the doctors are actually doing their job when they “go by the book”. Still, if a hormone-changing drug is powerful enough to stop hairloss, I think it just stands to reason that it is capable of screwing your hormones up… Can’t believe I was stupid enough to take a powerful drug for something as meaningless as hair.
It’s hardly our fault, although I too was reckless. The medical watchdogs should not have allowed this to be passed, and to continue to be available.
They are not medical watchdogs. They are cheerleaders of industry. Even if the FDA wanted to do something they are pretty much toothless since the Bush Administration…
I wrote to the “center for andrology and sexual medicine” in Stockholm yesterday. If there is any competence in Sweden regarding treatment of propecia victims, it should be there. I told them about my problems and asked if they had any experience in treating propecia-induced sexual dysfunctions.
I quickly received answers from two different doctors. They both told me the same thing; That I’m right about propecia sometimes causing persistent sexual dysfunctions. They have had several patients with the same symptoms. This is where the good news ends though. They both told me that there is no other treatment but PDE5-inhibitors for helping erections. Regarding the problems with reduced sexual desire and anorgasmia, you can only hope that they will go away with time 
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Sorry to hear about your poor doctor visit Bender. If I had the money I’d look into visiting some of these more reputable doctors too, but it looks like there’s not much they can do anyway…
Wrote back to the center for andrology, asking if they had checked hormone levels for their propecia-patients. The doc answered that everyone they had examined had normal hormone levels after ending the propecia treatment. Thus, they believed that the persisting symptoms where due to “changes at cellular level (CNS)”. I guess that means that the actual nervous system has been screwed up :-/ .
I also asked if they had any experience treating patients with wellbutrin for reduced libido/anorgasmia. The doc answered that it could be worth trying in my case. Didn’t say anything about if they had treated patients with it.
I’m seriously considering going to my GP, telling him about my problems and asking for wellbutrin. I don’t see me getting any kind of hormonal treatment and I don’t know if that would do me any good either. Since my problems are mostly sexual, maybe wellbutrin+cialis could take care of my problems. I sure could use an antidepressant now anyways :-/ . Also, maybe propecia have actually screwed up dopamine levels and wellbutrin could help cure that, though that’s probably just wishful thinking.
Went to my GP today and asked him for wellbutrin. Just took my first pill. It will probably take a week or two before I know the effects. I’ll let you know how that works out.
Went back to the urologist last week and I got to see another doctor this time. He checked my prostate and did not find anything wrong with it. He was at least slightly more willing to listen than the last uro. He said that “he had heard a discussion about propecia causing long-lasting sexual dysfunctions” :-/ . He gave me most of the hormone tests on the “short list” without complaining though. He said it might take a few weeks to get the results. I’ll post them when I get them.
It would probably be easier to get treatment if you lied and said you abused steroids for a year, that way they won’t get turned off when you bring up the P word.
Hehe, yeah. I’m a little too scrawny for them to fall for that though 
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Taking 150mg of wellbutrin now. Doc told me to up the dose to 300mg after 4 weeks. I guess I could up the dose a little earlier if I find I tolerate it well.
First pill yesterday gave me a slight headache and surprisingly seemed to alter my general mood already by the evening(!) I felt more energetic and happier and a little “hyped”. Maybe not so surprising as the drug works by increasing levels of dopamine and norepinephrine in the brain, similar to the actions of amphetamine :-/ . I think this may not be a good drug for people prone to being restless. Luckily I’m in the other end of the spectrum, so it might be a good drug for me. The instructions says to take care always to take the medicine in the morning as to not interfer with sleep. They are not kidding about that.
I’ve been taking wellbutrin for a week now and I’ve seen some improvement. I got morning wood several times, although the erections were quite weak. Before wellbutrin i never got anything unless on cialis or similar. Getting and maintaining erections are markedly easier and it is also easier to reach ejaculation, altough penile sensitivity and libido still are rather far from normal.
Sideeffects have not been too bad. Got a slight headache the first day. That went away the second day and was replaced by a slight dizziness, most of which has abated since.
Today I upped the dose from 150mg to 300mg, which is the normal dose and where I plan on staying. I was expecting another headache, but I actually didn’t feel much of a difference, neither in effect nor in sideeffects.
So far it looks promising. I’m keeping my fingers crossed, hoping I will continue to improve. I’ll post another update in a week or so.
There is a new ED drug on the horizon called Zoraxel which is supposed to increase dopamine rather than just getting bloodflow to your cock like PDE5s. Hopefully this will have a similar but much better effect than wellbutrin, if and when it gets approved.
Sounds interesting!
I just got the results from the bloodtests. The doc considered all results normal.
FSH: 2.9 IU/L [0.9-12 IU/L]
LH: 1.9 IU/L [1.1-8.8 IU/L]
Estradiol: 69 pmol/L [40-162 pmol/L]
Prolactin: 4.9 ug/L [3.0-20 ug/L]
SHBG: 65 nmol/L [13-71 nmol/L] - Seems too high
Free T: 22 [31-94] - ??? No unit specified and the range looks weird
Unfortunately they were unable to measure DHT. I have to call and ask about the values for free T. The SHBG looks quite high. That could mess with free T and DHT. Maybe I should start supplementing nettle root to get that down.
free t is below range and therefore not normal. common in post fin. if they cant do DHT go to a new endo.
Bender, your LH is also in the hypogonadal, and not normal, range. This means your pituatary is not making enough LH to signal your testes to make testosterone.
While LH secretion is pulsatile, thus leading some doctors to ignore it, FSH a compansion pituatary hormone is far less so, and yours is pretty low - low enough that a serum reading on inhibin B is warranted.
kazman
Thanks for your input!
Wrote an email to them yesterday, asking about the T value. The secretary told me they would get back to me on thursday. If the values are correct, there definitely seems to be something wrong.
One thing though; The blood was drawn in the middle of the day, not in the morning. I understand that T values are normally measured in the morning, when they are at a peak. Stupid. I asked the uro if I shouldn’t wait until the morning to get the tests. He told me he thought it would be ok, but that I should ask the nurse in the lab. I did and she told me I did not have to wait for taking those tests. I probably should have waited anyway. Might be easier to get an endo to listen if the T is a little bit lower in the tests though…