That is crazy so you knew him and you both crashed? What are the odds of that happening! How old was he?
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He was 21 years of age
Hi @vik1990, I am so sorry to hear. Did he visit a clinician and report his symptoms? If you have a familial contact I am able to let the foundation and a professor writing a publication on known PFS suicides know so they can reach out. Feel free to send me a PM if so.
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His family is very sad and angry they are in no position to talk right now
Goddamn it. That is so tragic. Insomnia is the worst symptom, bar none. It is one of the biggest independent predictors of suicide attempt, but especially when combined with mental disorders. I hope his family will find peace.
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Understandably. I didn’t mean this minute - the offer is there as and when if they would like. I know from personal contact that it helps some family members to know their loss won’t be dismissed and forgotten.
Our best wishes to them
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I feel guilty for him because I recommend finastride to him god won’t forgive me I am also suffering from same finastride side
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its not your fault. you couldnt have known it when even doctors dont know it and people like dr.trueb think we are just mental ill people and the drug is perfectly safe … then every dermatologist and psychologist would go to hell for the recommendations and prescriptions of fin, accutane and antidepressants they give
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This is very sad. Don’t ever blame yourself vik. There’s no way you could have seen this coming. How can this condition possibly be so rare when some of us know people IRL who were affected.
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This is extremely sad news. This poor guy had so much to live for and is now gone because a Corporation put profits over lives. I had a look at those Merck executives on their website all looking rich and very pleased with themselves. They live in different worlds to us.
PFS is such a lonely condition because modern medicine seems unable to detect it and Dr’s don’t believe us. For a young guy at 21 that must be very frightening. I am trying to post more on mental health in the hope that it will help bring awareness to the young guys who are struggling and confused.
We can pay our condolences at times like this but I think as a community we can be doing more on mental health. Perhaps we should hold a mental health day every so often were we each post one thing on mental health to help raise awareness.
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These are the true pieces of shit of this world. All of this anger and hatred toward foreigners, people of different races, different genders, different religions, different familial backgrounds, different economic status, and professional liars are adulated instead of being treated as the world’s greatest evil.
They might as well have killed this kid in cold blood as far as I’m concerned.
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It just so happens that I know two people that have PFS. One for 15 years and the other for approximately 4. Both have improved significantly but are not 100 percent. This condition is not as rare as we are led to believe…
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I know of 4 people IRL who likely suffer from this.
One was an ex of an ex who she said was the only other guy she was ever with who ever had trouble getting it up, and he took Accutane at 14.
One was an acquaintance of the ex wife who told her that her boyfriend had something similar to what happened to me, with severe depression after taking an SSRI for anxiety and transient (according to her) ED.
Had a coworker who was prescribed an SSRI (IIRC Prozac) who hung his head low and said things “weren’t quite the same” after he told me he was on an antidepressant over layoff and I mentioned some people have permanent dick problems after taking an SSRI. He knew I had problems with Accutane, but I never really described the severity of sexual side effects to coworkers.
I remember another coworker from long ago coming back to work after being gone for a time and he was freaking out something about “I can’t even fuck my wife anymore”, “the doctor said it was only supposed to be a temporary side effect” . Also overheard him talking with another coworker about filing a lawsuit around the same time. I don’t know much about how to describe MPB, but he only had a “crown” of hair left around his ears, wrapping around the back of his head, so assuming it was finasteride that did this to him. This was 17-18 years ago, but something like that stuck in my memory because it sounded a bit like what happened to me.
Not making one word of this up and I can understand how something like this can go under the radar because people are so reluctant to talk about it, doctors often won’t acknowledge it, and it is something people often must piece together for themselves.
Even if this is a rare condition, if 1/1,000 has “at least” a mild form of PFS/PSSD/PAS, then you probably walk past another one of us everyday. That’s how I look at it.
And this isn’t taking into consideration other people I know of who were damaged by prescription drugs in other ways. A girl who shit and vomited blood for a couple years after Accutane. My sister and ex, who both had their gallbladders removed within a month of starting Yaz and a young girl who my sister was friends with who died from a blood clot a week before her wedding and within a month of starting Yaz. I have a good friend who had persistent issues from Saw Palmetto and Accutane, then was damaged by a cosmetic laser surgery and is now dealing with the same shit of doctors not acknowledging that some forms of laser surgery can trigger unchecked apoptosis that leaves scars and lumpy skin.
I tend to shy away from people who call conventional medicine barbaric in defense of the purported safety and efficacy of alternative medicine, but can’t say their wrong in making that generalization.
Half of this shit ruining people’s lives isn’t even lifesaving.
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A miserable statement.
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A miserable statement about a miserable industry.
Lying about safety for the sake of pushing drugs must be one of the most harmful of villainous enterprises in modern times. It’s so easy to get away with because it’s so hard to prove.
Please let me trade this miserable life in exchange for getting ripped-off on volcano insurance instead.
@vik1990, have you heard anything recently from the family of the victim you were acquainted with?
I hope you have left any guilt over what a pharmaceutical company did to this guy behind you.
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I agree with every single word you said. What I still don’t understand is how it is possible that I used to believe taking prescriptions drugs was in fact a good thing – because, I thought, I was either improving myself or preventing a disease in the future. I really believed in scientific papers and in medicine in general.
I was also so naive about human nature. I thought most people were good, moral and ethical and that a pharma company would never put out a drug they knew was dangerous let alone harmful. Needless to say I believed the assurances and recommendations of regulators, scientific bodies, medical associations, etc. Why didn’t any adult tell me the truth about homo sapiens and the world when it actually mattered… that’s what I want to know.
Before I got PFS, my life was all but destroyed by antidepressants, which I voluntarily took for 10 years because I thought I was better off on them (and because I believed what I was reading in the literature). I know a couple of other people in my life who were either destroyed or severely damaged by antidepressants, as well as many examples of damage from other drugs.
My mother took Fosamax for osteoporosis and had a hip fracture, which ironically is a known side effect of the drug that is supposed to strengthen your bones. A child in my extended family was misdiagnosed with epilepsy and was most likely brain-damaged from phenobarbital which he took for years in a critical period of brain development as a toddler to prevent seizures.
Someone else I know has every disease known to mankind in all systems and organs of the body as a result of medications for metabolic syndrome and type 2 diabetes, conditions she would have been able to entirely prevent and control with lifestyle modifications had doctors told her that 20 years ago. She is now on at least 15 different drugs, most of which combat the damages done from the others. I can keep going…
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Yeah, I forgot to mention my father is a total wreck due to a mix of defoliants that the US government lied about, medical negligence on the part of his GP in treating obvious diabetes unchecked for 5 years that probably resulted from that exposure, a possibly botched heart surgery where they seemingly forgot to turn on his oxygen supply for a time, and the massive cocktail of drugs he is on now.
In all honesty, I know of 2 people who beat diabetes through diet changes and was told my father could have reversed his by giving up high-carb meals.
Double forgot to mention all of the good guys turned into drug addicts in my region by Perdue’s oxycontin, the prescription smack that’s supposedly less addictive than vicodin, according to the FDA’s parroting of the manufacturer’s lies.
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On the other hand, I am very close with someone who was saved from a life in a wheelchair by a monoclonal antibody for MS. Very different when the risk vs benefit is truly life and death with no reasonable alternatives.
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I get that you’d feel naturally crushed by guilt from this. But please, know that this was not your fault. You must make peace with this situation. Don’t beat yourself up over something that was not of your control. A multi-national, being what it is, chose to place profits over patients. Focus on letting go of stress and healing yourself.
Yet life saving drugs from cancer drugs to something simple like insulin have their prices grotesquely driven up due to inelastic demand thanks to a profit model of healthcare. I can’t imagine denouncing companies in a vacuum without denouncing the former.