Thanks for you response RR3, I agree to be carefull.
The list in the original post suggest that there is a reason to believe that each supplement on it is dangerous for us. Whether it are scientific studies that show that it is a 5ar inhibitor or one or more user experiences. For most substances on the list I am aware that these are dangerous for us.
But that NAC is dangerous for us is something i am not aware of. So my question is, what the rational behind it is? Is it a 5ar inhibitor or anti androgen substance? Are there studies that showed that? Did on ore more people crashed on it? What is the reason it is on this list?
I really don’t know why NAC is considered dangerous, I used it before and it didn’t have an impact on me one way or another.
@Apr1989 actually got well from cycling tribulus, but it might be something we need more information on, as each of us are different.
I’ve actually felt on okay on a low dose of clomid, but I can’t get it prescribed to me long term and it’s probably not ideal for it to be used long term.
This is one of the toughest mysteries to figure out. For me I know if I can get my T up I’ll be okay.
If everyone is different, does that mean you should try it and see what happens? I am not considering myself a laboratory mouse. Unless you have hard proof of why this is good for some and bad for others, you better don’t give opinion on that topic mate. I can come up with the talk why would you blame Fin, many people have good experience with it?
Our bad react on Finasteride, Accutane, SSRIs etc… Is the proof that our bodies can’t tolerate hormones manipulation. Why we should play manipulate hormones again, using supplements and drugs?
Unfortunately I understood it too late, when the damage is now irreparable. I will end up as Douglasmich, Konflict … However, I hope that this thread will be kept alive, even when I’m gone, so as to save some human life. Unfortunately, it is full of posts from people who take absurd substances and claim to be cured. This is very dangerous, because, in desperation, someone could try to imitate them. I did so. @tisho1012 , please try to spread this thread. I wish someone had already done it and I had read it before that.
I think the Moderators have to take care of that, as this is really getting ridiculous… How can someone preach not to eat this, not to eat that, as it is inflammatory or 5AR inhibitor and at the same time loading up with shitloads of herbs and vitamins, chemicals and drugs, I mean WTF? I am on the same boat as you man, so Demon is and others too.
As far I as what can I do, I will counter every post I see when some smart guy try to give an advice about PFS and how to cure it.
I really do see your points, but this is not so clear cut. Trust me, I’m equally annoyed. I’ve written thousands of words on this (@tzinkman can attest) addressing what an absolute dereliction of duty it is for the medical profession to leave people in a completely unsustainable situation that often leads to desperation-induced risk due to the unrecognised severity of their physiological problems.
We make it absolutely clear on our site that there is no known therapy, we do not endorse the opinions of members and that assertions by people on this or any patient platform should in no way be considered medical advice. Although it’s unfortunate that some patients with functional symptoms want to play doctor, we have addressed this as best we can with a (often resisted) policy of not allowing users to make or share definitive, diagnostic or prescriptive statements. We are going to be moderating slightly more strictly as we shift into outreach and further networking with scientists in the new year, as time is up on that and we need to take the issue to the next level now our projects are reaching fruition.
However, it has to be noted that this is not all these therapeutic reports are. Many people are genuinely modulating their symptoms significantly with the same substances that are causing often persistent harm in other patients. These reports make theoretical sense, but above all, provide crucial and demonstrable data, which is a key practical benefit of providing this forum. Despite individual patient inferences, what they took and what happened to their symptoms is important to record. We have a system for doing this more effectively now (although the result system is yet to be built).
The problem here partially lies in the fact that people will arrive in distress, begin searching for keywords about cures, consider a weighted selection of reports that often coincide with a paragraph “theory” and then start ordering things. It’s usually only after they have quite a bad reaction they get to grips with the vulnerability that a lot of patients, particularly ones who took it for a very short time and wound up with severe PFS, experience. There’s very little we can do about this besides not letting patients speculate or report their therapeutic attempts, which is not reasonable. Ultimately, we can only do so much.
Something to consider might be a serious adverse event reporting log topic in which you request only posts reporting significant detrimental impacts from therapeutic attempts, summarised clearly without further discussion or speculations. That would allow for easy cataloguing and linking to posts you would like to raise with others.
Hi Axo,
The log topic sounds like a good idea. Also if there is a way we can separate the PFS guys by different blood test groups and relate that to their supplement and vitamins experience, probably we can extract a valuable info about what certain people can do and what can’t. I know this is a lot of work and you are bussy guys there with the other projects you are running, so just giving my two cents here.
Regards,
Tisho
“A journal and low doses”?!
Thats how i took finasteride and I got screwed anyway. The problem is you dont see gradual (or small/medium) changes because there is natural fluctuation over time in how you feel. My dairy has a couple entries where i wonder if i have reduced sensation, but i didnt wake up!
The other cause was that i wasnt in a relationship so I was assessing myself based on masturbation (gradually shifting to masturbation to porn, otherwise i didnt get it up, but i didnt even realize). Which is nothing like sex. So i missed all the early symptoms. So yeah, even a journal won’t necessarily protect you.
Special thanks to Rb26dett for starting this thread!!
I (and undoubtedly 1000s of others) was about to try out a bunch of these suggestions too, figuring I had nothing to lose. But we still do have things to lose, including you Rb26dett (bless you!). My forum name may sound ironic, but is a reminder that we can still try to make the best out of our current situation. We have to. We only have one shot at this thing called life. Life has been hell as I’ve come to grips with the situation but I’m going to give it my best. For motivation, check out Jordan Peterson on meaning. He was born with lifelong depression.
P.S. there should be a HUGE banner warning above every topic to stop visitors from copying stupid protocols/products. That’s the only place they’ll see it.
When people talks about a crash after a supplement what are the symptoms of that “crash”?
Also,
How long it takes after the introduction of the supplement and the apparition of the symptoms?
Maybe we have drug hypersensitivity, and the introduction of low doses can avoid that.
