My overall body temperature dropped after FIN, but the feeling of “coldness” in my penis or pelvic floor may only the best description of what sensation is there. In other words, it’s hard to know what I’m feeling, but it feels ‘cold’ while I do know that just by palpitating my glans (penis head) that has been colder since 6 years ago.
I am not sure it is a circulation issue, maybe only to an extent. When my penis would get cold and shrunken i use to use a heat pad above my pyjama in this area, and yes i felt more circulation less cold, same if i go for a long walk, but the numbness was still there.
I read somewhere that dht is responsible for this electric feeling in the genital skin. When dht is not binding correctly your genitals feel dead…
Here is an additional data point: me and several others on this forum saw substantial short term improvement in sensation after taking pro dht or dht supplementation… How can we explain that?
The only problem is that they do not last, and it feels as if the body builds immunity to this…
tBone: since you have been suffering for 6 years with apparently very little improvement did you try some of the more aggressive experimental treatments such as progesterone? Or at least tribulus?
I can understand people who are one year in hoping for a natural recovery and afraid to rock the boat but past few years i would try anything…
And finally: are you participating in any pf the studies? We reallly need people, particularly those with genital numbness since they are going to study the epigenetics of this condition…
I’ve participated in the Boston study. I went there last summer.
The thing about our problem is that A) no one has had answers except that B) some who are able to complete a regimen which involves some exercise on one’s feet along with some supplements and special diet (see some recoveries on this forum). In my case, I have not been to an endocrinologist in over 5 years because no one has offered any evidence that they have a real solution in endocrinology. I am just now scheduling to see some endos ASAP and maybe one or two urologists.
If I were able to complete lower body workouts like I would have years ago while using diet, sauna, massage, fasting etc., I know I would have a better chance. Alas, I cannot do all of those things and I am NOT able to exercise like I used to due to a lower body injury 7 years ago (and subsequent 4-5 surgeries).
I am not the only one on this forum who has had this condition for more than 5 years and I’m not the only one who refuses to try injections, Rx drugs, and many supplements. I’ve tried TWO and they’ve made things WORSE for me.
In another world, I would have just gone to a tropical environment, abstained from sex, done moderate workouts, used sauna, got plenty of sunlight, etc. etc.
But I haven’t given up. I want to know what 5 alpha reductase injections might do --if such a thing is possible, or HOW we might increase endogenous production of DHT slowly, over time (not suddenly). Maybe some endo can help me with this.
All I know is the guys at hard flaccid get the same numbness. They even complain about not being able to feel hot/cold, etc. My sensitivity fluctuates.
I know I found it very curious that people who have not taken propecia had some hard flaccid thing + numbness …
BUT most of them do NOT have persistent numbness… most have hard flaccid and most of them recover after a while
I had HF for about a month and it was gone …
I also suspect that those few members who have persistent numbness have messed up hormones. I spoke with few of them, one admitted having taken propecia and the other admitted having abnormally low T…
T-Bone:
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what is this exercise with one leg? I would be interested to know.
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what is this couple of things that you tried and did feel worse?
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I was alluding to the fact that I cannot do enough exercise with only one fully-functional leg/foot/hip joint
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I tried only 2 things in six years: 1) “Inhibit-E” and 2) broccoli extract. So, presumably, BOTH of those things would have INCREASED my androgen hormones and perhaps that’ what made things worse for me (more permanent shrinkage and de-sensitization).
If i were you i would try progesterone, or tribulus, or other supplements that cdnuts tried,… If you have not seen a gradual improvement yet are you optimistic about this happening evver again?
This is scary sht. When i read you story i got very depressed. I am two years in and i probably thought about 50 times to kill myself,…
I have read people on here say that their, for example, arm falls asleep more quickly post-fin. We have to keep in mind that we may be more susceptible to nerve compression related numbness than neurologically healthy men.
It is very possible that lack of allopregnanolone/THDOC could cause nerves to go numb/reduce transmission with the slightest interference; ie the pelvic floor contracting on it.
I’m curious if anyone who used alpha-1 blockers noticed an increase in sensitivity.
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