I don’t think he meant to attack you and was just trying to lighten the mood, but I can understand you perceived it in a different way.
I’m with you and I’m sure we’re all weary of people distorting the narrative on this disease.
But I think it’s important to remember that some random people on YT, no matter how popular, will never have more weight in this than published medical studies or patient testimonies and all the things this community has been working together on.
With time, it may become possible to flag and take down videos like this with a few clicks, if that is even worth bothering with. Until that time there’s very little you can do about it apart from having lengthy discussions with people in a comment section or trying to send them an informative message, efforts that will probably fall on deaf ears and drain you more than it is likely to have effect. Unless YT starts enforcing a way more advanced content filtering policy, there’s just very little that’s stopping any random person to upload videos like this.
It’s just not worth patients’ emotional/time investment to get worked up about every social media persona that says something wrong about our situation. Please remember that your own well-being comes first, and that videos like this will continue to pop up and happen. There’s very little practical use in creating topics like this, because it will only lead to some flame war with someone who doesn’t deserve the attention and might in fact be helped with said attention.
Let them bark, we’ll be vindicated in the end. Don’t give them the power to frustrate you, because it’s not worth more than a dismissive sigh or chuckle and a single click to a more entertaining video.